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Jodi Enders

Jodi Enders is an artist, advocate, and anthropologist diagnosed with Myasthenia gravis (MG). She was misdiagnosed and incorrectly treated for Lyme disease and then Lupus throughout college before her Lupus treatment led to her first MG crisis. Read more.

Vyvgart Side-Effects and Adverse Reactions

We understand that using Vyvgart (Efgartigimod alfa) can sometimes come with side effects. Could you share any experiences you've had with it? Did it lead to your doctor ordering you...

0 replies

Treatment
Side Effects
Awareness

Birth Control and Myasthenia Gravis

Have you been on birth control for the entire time you had MG, or did you stop or start birth control while having MG? How does birth control affect your...

0 replies

Tips & Advice
Newly Diagnosed
Awareness

The Order My MG Symptoms First Appeared

For many individuals with myasthenia gravis (MG), their symptoms appear slowly over years before they finally get answers to their suspicions or start to realize there may be a condition...

By Jodi Enders

4 min read

2 comments

Neonatal MG and precautions taken by birth team and throughout pregnancy

For those who have experienced the unique journey of giving birth while managing MG, could you share the precautions, if any, that your birth team took for the potential of...

0 replies

Awareness
Tips & Advice
Treatment

Tips for Finding a Therapist To Help Navigate Life With MG

I have seen many therapists throughout my life but have never had luck finding one with whom I truly connected and saw improvement. Once myasthenia gravis (MG) came into my...

By Jodi Enders

4 min read

0 comments

Myasthenia gravis and adverse reaction to the meningococcal vaccine?

Do you have Myasthenia gravis and had an adverse reaction to the meningococcal vaccine required before starting the MG treatments Ultomiris, Rystiggo, Zilbrysq, and Soliris? It's crucial to know that...

0 replies

Treatment
Awareness
Refractory MG

MG Treated with Steroids Induced Type 2 Diabetes?

Have you been treated with steroids (corticosteroids) and eventually were diagnosed with type 2 diabetes? What dose were you on of the steroids, and for how long? --- "Statistics show...

2 replies

Treatment
Awareness
Newly Diagnosed

Zilbrysq (Zilucoplan) users and past users, how has your experience been with Zilbrysq?

Hi there, fellow Zilbrysq (Zilucoplan) users and past users! How has your experience been with Zilbrysq? Did you notice improvement with zilbrysq? If so, how long did it take to...

0 replies

Refractory MG
Treatment
Tips & Advice

Rystiggo (Rozanolixizumab-noli) users and past users, how has your experience been with Rystiggo?

Hi there, fellow Rystiggo (Rozanolixizumab-noli) users and past users! How has your experience been with Rystiggo? Did you notice improvement with rystiggo? If so, how long did it take to...

0 replies

Refractory MG
Treatment
Tips & Advice

Vyvgart Hytrulo (Efgartigimod alfa and hyaluronidase-qvfc) users and past users, how has your experience been with Vyvgart Hytrulo?

Hi there, fellow Vyvgart Hytrulo (Efgartigimod alfa and hyaluronidase-qvfc) users and past users! How has your experience been with Vyvgart Hytrulo? Did you notice improvement with vyvgart hytrulo? If so...

0 replies

Refractory MG
Treatment
Tips & Advice

Rituxan (Rituximab) users and past users, how has your experience been with Rituxan?

Hi there, fellow Rituxan (Rituximab) users and past users! How has your experience been with Rituxan? Did you notice improvement with Rituxan? If so, how long did it take to...

0 replies

Refractory MG
Treatment
Tips & Advice

Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris?

Hi there, fellow Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris? Did you notice improvement with Ultomiris? If so, how long did it take to...

0 replies

Treatment
Refractory MG
Tips & Advice

Struggling with Constipation?

Do you struggle with constipation, whether MG or MG treatment-related or due to another cause? Have you found anything that helps resolve the discomfort and situation?...

1 replies

Awareness
Treatment
Tips & Advice

Unsuccessful Prednisone Taper

Has your doctor directed you to taper your prednisone, and your body rejected the withdrawal? --- At what point in the taper process did your body start showing signs of...

2 replies

Treatment
Awareness
Newly Diagnosed

Fearing I Will Make the Wrong Healthcare Decisions

Chronic disease predisposes those of us with myasthenia gravis (MG) to chronic worry. We rely on MG treatments to keep our symptoms under control, but we may also rely on...

By Jodi Enders

4 min read

0 comments

Do you experience worse MG symptoms during menstruation (your period)?

During the menstruation phase of your menstrual cycle (period), do you experience aggravated MG symptoms? Does anything provide you some relief?...

3 replies

Awareness
Tips & Advice
Triggers

How to Find Relief from Nightly Leg Cramps

There are many online discussions and articles concerning nightly leg cramps with myasthenia gravis (MG). When people ask how to manage cramping, a few things are recommended in the comments...

By Jodi Enders

4 min read

19 comments

Do you have MG and have tried Magnesium L-Threonate or Magnesium Glycinate? Did you have any adverse reactions?

While there's a wealth of published studies on Magnesium Sulfate and Myasthenia gravis (https://myasthenia-gravis.com/clinical/magnesium-sulfate), the same can't be said for Magnesium L-Threonate or Magnesium Glycinate and MG. If you're an...

0 replies

Awareness
Newly Diagnosed
Triggers

Embarrassed by MG Speech Struggles

Myasthenia gravis (MG) speech troubles cause me embarrassment, frustration, and depression. Trouble speaking from MG can contribute to a lower quality of life, whether it gets in the way of...

By Jodi Enders

4 min read

9 comments

Has a Fever Triggered Your Myasthenia Gravis Symptoms?

Has a fever triggered your MG symptoms? How severe?...

2 replies

Triggers
Awareness
Muscle Weakness

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