I have had MG for 18 months. I am a 70 year old male.
On cellcept, Mestinon and recently stopped taking a 5mg steroid. Get IVIG treatment (4+ hours) monthly in my home. (Tried to stretch IVIG to every 6 weeks-didn’t work). Been taking these meds for about one year.
I tried a super micro cap mushroom and my face control increased!!
I am going to try this again. Anyone else ever try this?
Major problems are all that are listed. Getting close to my first MG crisis. (Can’t clear throat in middle of night). Go slow and remain calm
Biggest problem is no control over my GI. I do disagree with Dr who suggests it is primarily Mestinon related. Disgusting- home bound
Would welcome to hear your thoughts if u can relate (!)
Peter