Why would he chage it if it has been working for 2 years?
EvieMember
i was receiving immunoglobulin infusions monthly for 2 years. It worked so well I never had a breakthrough and would have never known I had the disease. I had to change Drs. and it is a nightmare! Now have shortness of breath and leg and arm/hand shaking. This is very frightening! He has not followed what I was getting for this disease. I dont know what to do. Will this get worse? will I stop breathing? Urge to have bowel movement. I am sero negative.
EvieMember
Pyrodostigmine 4 Times a day?
danny031Member
As my neurologist explained positive and negative MG are treated the same way at first Mestinon is prescribed if that's not working autoimmune suppressant medication is explored
EvieMember
my medication had never stopped working. I changed Drs. because I dont drive now. This Dr, . is local. My son drives me during his lunch hour but had to take a half day off work. He cannot keep doing this monthly. Previously I was receiving home infusions. I dont understand why he would change what I was receiving that worked. I have the supplemental insurance that covered me for home infusions.