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share their experiences of suffering from myasthenia gravis

I have the medical condition myasthenia gravis and I was wondering if there are any other people on this forum with this condition who would like to share their experiences of suffering from it.

  1. I was diagnosed with mg five years ago and without going into too much detail i eventually hadca ct scan of my chest which showed a thymoma on my thymus gland. In 2021 i had a thymectomy and have been in remission ever since with no symptoms. The thymus gland plays an important part in the immune system and removal of it definitely aided my recovery. At the age of 82 i am now in the gym four days a week and enjoying life. I still take mestinon and mycophenolate but weaned myself off steroids because of the horrible side affects. Having a good neurologist is also important. Best of luck

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