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Treatment Question

Hi I have mg and taking prydistmeneand predestalone does this help double vision?

  1. thanks it certainly was . No more trouble with eyes but have had really bad muscle pain mainly with biceps and thighs, neck ,shoulders and upper back . I own ponies and inspite of the pain am able to feed ,fill haynets and muck out ..which is a big improvement ..need to rest in between jobs

    1. hi the steroids I'm supposed to take 1 per day for seven days then 2 away and so on up to 12 away but I won't take that many and hopefully I will see an improvement b4 I get that far then ween of the mestinon tabs it's so frustrating how do you cope I've got holidays coming up abroad and don't know weather to go or not with this condition

      1. Pyridostigmine (Mestinon) is used to improve various types of muscle weakness. Prednisone is often used to suppress your immune system (lowing the production of antibodies that enter the blood stream). It can take a bit of time before you start seeing any improvements if you are just starting off. As for me I've been on these 2 medications for 10 years and if I start to have a flare up It'll normally take me about 2+ weeks before I start to see any improvements. I do take prednisone and Mestinon in conjunction with monthly IVIG sessions. How long have you been taking these medications together? - Jazmin (team member)

        1. Hi cant think what i said now anyway im going on holiday in September and a bit worried that i may not enjoy it as any members tios for hols if it a bit warm

        2. hi I've only been taking the two medications together for one weak but I feel very tired today Sunday when I woke I felt like my knees and shoulders were lead weights

      2. I found that my eye sight returned to normal around 10 days after starting prydistmene in Dec 2022 and has stayed normal . I had double vision and migraine since November 2022

        1. Hi , I am so glad to hear you found relief from migraines and double vision. I can imagine how welcomed that relief must have been for you. How have you been feeling lately? I hope well. Please know we're here anytime. Wishing you a lovely weekend. Kindly, Jessica, MG Team Member

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