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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 8 days ago

Muscle and neck pain

Does anyone elsr suffer from muscle and neck pain? I feel the weakness in limbs but the pain really bothers me....

Active 8 days ago

are my symptoms a sign of having MG after having a thymectomy?

I have had a thymectomy on 4/29/24 a tumor was found on a cat scan for something not regarding MG it was...

Taking pyridostigmine

After 2 yrs of stroke like symptoms, blurry vision, low o2, intolerance to heat, trouble chewing and swallowing...I have a diagnosis of...

MG Terminology

I bet we all remember the first few years after being diagnosed with Myasthenia gravis and constantly finding new MG-related terms we...

Has anyone used imaavy infusion

I am 78. I have had MG since 1998. I presently take prednisone and IVIG infusion. I have taken prednisone since 2000...

Are specific vaccinations safe with MG?

We have a new granddaughter and my son has expressed an interest that I get the new fall Covid vaccine and flu...

What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can...

What are your go-to home hacks for conserving energy with MG?

From using adaptive tools in the kitchen to reorganizing daily essentials so they’re within easy reach, we all develop our own strategies...

Congenital myasthenic syndrome

I'm a Brit in my mid-seventies living in Germany and have had CMG for the past 35 years. CMG means that I...

MG Anti Musk

My father's ventilator weaning is not happening since 45 days. Ivig just completed...

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