Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

New diagnosis with double vision

Tried mestinon twice for 3-4 weeks with no improvement. I will see a neuro muscular specialist soon and wondering what others have tried when mestinon did not help...

I can’t talk for myself but I will tell you a true fact

As you may or may not know but I’m from Sydney Australia & this is my story or should I say a fellow MGer, I met this friend in Hospital...

What to expect from MG

Hi everyone, I’m a 19 year old female and i’ve accidentally got diagnosed with MG, I got sent for a CT scan with contrast for my seizures and then found...

Systems after being diagnosed with MG 20 years later.

I was diagnosed with MG in 2004 and went in remission in 2009. After taking care of both my parents and helping raise four grandchildren and losing my father in...

Switching MG Treatment Brands

Have you had to switch MG treatment brands before, possibly due to insurance or shortages? Did this result in any adverse reactions or problems?...

MG and weight loss injections

Hi All Has anyone any knowledge of having weight loss injections when you have MG? Dr is asking me to consider as I am very overweight and am diabetic. I’m...

Medication side effects

Are you currently taking any medication to manage your MG symptoms? If so, which are you taking? How long have you been taking them? What is something you wish someone...

Have you or a loved one been involved in a Myasthenia gravis clinical trial or study?

Have you or a loved one been involved in a Myasthenia gravis clinical trial or study? (https://myasthenia-gravis.com/clinical/understanding) Your participation in these trials is incredibly valuable. It furthers our understanding of...

MG flare or emergency while out of state or country?

Have you had an MG flare or emergency while out of state or country? How did you handle the situation? --- If not, have you had a discussion with your...

MG and weight loss medication

If you have MG, are there risks taking the popular drugs for weight loss and A1C like Ozempic, Mounjaro, etc?...

Categories

Select a category to find topics that interest you.