PregnancyI’m a looking for some information from mothers with MG on how the pregnancy went and how your child’s development has gone? Me and my partner have been looking into...reactions1replyAwareness
MG Treated with Steroids Induced Type 2 Diabetes?Have you been treated with steroids (corticosteroids) and eventually were diagnosed with type 2 diabetes? What dose were you on of the steroids, and for how long? --- "Statistics show...reactions2repliesTreatmentAwarenessNewly Diagnosed
Struggling with Constipation?Do you struggle with constipation, whether MG or MG treatment-related or due to another cause? Have you found anything that helps resolve the discomfort and situation?...reactions1replyAwarenessTreatmentTips & Advice
Neonatal MG and precautions taken by birth team and throughout pregnancyFor those who have experienced the unique journey of giving birth while managing MG, could you share the precautions, if any, that your birth team took for the potential of...reactionsrepliesAwarenessTips & AdviceTreatment
Birth Control and Myasthenia GravisHave you been on birth control for the entire time you had MG, or did you stop or start birth control while having MG? How does birth control affect your...reactionsrepliesTips & AdviceNewly DiagnosedAwareness
Do you experience worse MG symptoms during menstruation (your period)?During the menstruation phase of your menstrual cycle (period), do you experience aggravated MG symptoms? Does anything provide you some relief?...reactions3repliesAwarenessTips & AdviceTriggers
Exposed to Agent Orange During the Vietnam War and Developed Myasthenia Gravis, or Your Children?Were you exposed to Agent Orange during the Vietnam War? Do you or your children have Myasthenia Gravis? Many individuals suspect that Agent Orange may have caused their development of...reactionsrepliesAwarenessNewly DiagnosedWork & Employment
MG in the mediaFeeling conflicted having just watched Madame Web on Netflix. Good to have main stream exposure, but I believe like most streams a bit of misinformation. I hope the attempt was...reactions3repliesAwareness
Unsuccessful Prednisone TaperHas your doctor directed you to taper your prednisone, and your body rejected the withdrawal? --- At what point in the taper process did your body start showing signs of...reactions2repliesTreatmentAwarenessNewly Diagnosed
Myasthenia gravis and adverse reaction to the meningococcal vaccine?Do you have Myasthenia gravis and had an adverse reaction to the meningococcal vaccine required before starting the MG treatments Ultomiris, Rystiggo, Zilbrysq, and Soliris? It's crucial to know that...reactionsrepliesTreatmentAwarenessRefractory MG