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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Does Prednisone cause hair loss? Or is it Mestinon

Do MG meds cause hair loss? Not sure what meds are causing it. Mark...

Possibility of only Ocular MG and not worse symptoms

I've had a sleepy eye in one eye for 30+ years. I'm currently approaching 60. At least my wife has noticed that I've had a droopy eye for our entire...

Bedridden or Limited-To-Home? What occupies you?

Do your myasthenia gravis symptoms or the combination with another condition currently have you bedridden or limited to home activities? What entertains you? Let's throw around ideas or favorites to...

MG and Covid

My wife just tested positive for Covid, so I expect to follow her in a day or two. I have recently been diagnosed with a mild case of MG, but...

Cane Use

I was 'sort of' diagnosed with MG by an ophthalmologist who specialized in neurological eye issues -- awaiting blood test results for the Mayo Clinic. Anyway, when I walk my...

How do you cope with flare-ups during the holidays?

I know many of us love the holiday season, but with much running around some of us can have a difficult time keeping our symptoms at bay. What symptoms do...

Cooking with MG

Like so many others, I have had difficulty eating and even more difficulty in cooking my own meals. As such, I have become dependent on family members for food and...

What are your Goals and/or Challenges

Join me in an empowering discussion as we discuss our goals and the challenges we face on our journeys. Sharing our aspirations and obstacles can help us to connect as...

MG & Vision

I am 68 years old and I was diagnosed with MG last March when I woke up one day and I had double vision and I couldn’t open my left...

Still no remission 10 months after thymectomy.

I was told that remission wasn't guaranteed after thymectomy. But I'm still disappointed. I'm restarting IVIG and still battling Mestinon side effects. Does anyone have any encouraging words?...

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