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Read conversations, start a discussion, and connect with others about myasthenia gravis.

What Main Quality Do You Look For in a Doctor

When aiming to find a doctor that feels like a good fit, we must remember that health professionals are human and not perfect. Some have so much on their plate...

Seronegative MG

Hello! I was diagnosed in March 2020. I am a 30 year old female...I'll give you a little backstory..heads up it will be long! To start- I have never had...

Your Experience Terminating Being Under the Care of a Doctor

Many of us have had at least one healthcare professional that we quit going to see because we believed they didn't provide quality care, listen, be respectful, be thorough, educate...

Azathioprine (Imuran)

Hello, I am newly diagnosed as of November '22. I am responding well to Pyridostigmine, with speech and swallowing problems greatly reduced. Now my neurologist wants me to take Azathioprine...

Unusual presentation of symptoms

Hello I wanted to share my unique story in hopes of making sense of a mystery. My doctor after about a month of trying to rule other things out is...

possibly diagnosed with MuSK MG and confused/scared

I am a 34 year old woman in New York and for the last 7 months, been having strange symptoms on and off. It started with my arms/legs tingling and...

Therapies to relieve symptoms

Hey everyone, I'm looking for some therapies that might help relieve some of my symptoms. For a bit of background... I'm 26 and recently diagnosed with Myasthenia Gravis, whilst my...

Been ghosted by my neuro's PA

Early this year, just before I got my monthly shot in the eye, I mentioned to my retina specialist that my left eye would suddenly go droopy and I would...

Swings of emotions following diagnosis

I'm pretty new here, I'm experiencing huge swings of emotions following diagnosis. From extreme relief and happy that I have an answer to real anger and crying over being ignored...

Advice about antibiotics

I was diagnosed with MG in Feb '22, as a result of double vision and droopy eyelids. Luckily only misdiagnosed briefly as 3rd cranial nerve palsy before getting corrected diagnosis...

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