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Read conversations, start a discussion, and connect with others about myasthenia gravis.

possibly diagnosed with MuSK MG and confused/scared

I am a 34 year old woman in New York and for the last 7 months, been having strange symptoms on and off. It started with my arms/legs tingling and...

Therapies to relieve symptoms

Hey everyone, I'm looking for some therapies that might help relieve some of my symptoms. For a bit of background... I'm 26 and recently diagnosed with Myasthenia Gravis, whilst my...

Been ghosted by my neuro's PA

Early this year, just before I got my monthly shot in the eye, I mentioned to my retina specialist that my left eye would suddenly go droopy and I would...

Swings of emotions following diagnosis

I'm pretty new here, I'm experiencing huge swings of emotions following diagnosis. From extreme relief and happy that I have an answer to real anger and crying over being ignored...

Advice about antibiotics

I was diagnosed with MG in Feb '22, as a result of double vision and droopy eyelids. Luckily only misdiagnosed briefly as 3rd cranial nerve palsy before getting corrected diagnosis...

What would you tell yourself when you were first diagnosed?

Its easy to notice where we are in the present and where we'd like to be in the future, but what would you tell yourself back when you were told...

Treatment

Doc is looking @ Imuran or CellCept & IVIG for me. Anyone have any insight or experience with these treatments? *sounds like the "cure" may be worse than the disease?...

Plasmapheresis cessation

My wife was recently diagnosed with MG and had a thymectomy two and a half months ago. My expectation was that she would be on medication to control symptoms from...

Newly diagnosed at age 82

Since 1997 I've had symptoms which I think have been myasthenia gravis all along but was misdiagnosed with a psychiatric disorder, bipolar II rapid cycling. Symptoms were physiological only, with...

Positive MUSK antibodies, followed by 2 negative tests, then enlarged thymus.

I have had strange weakness symptoms on and off for about 10 months. My doctors checked for M.S and a few other things , all of which came back negative...

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