Pyridostigmine (Mestinon) Shortage in UKYou may be among the many frantic over the pyridostigmine (mestinon) shortage in the United Kingdom. --- How has this affected you? Has your doctor adjust your treatment to accommodate?...Reactions0reactionsComments1 repliesTriggersTreatmentCrisis
Immunotherapy (stem cell)Does anyone have experence treating autoimmune MG with immunotherapy (stem cell) treatments simular to what is used in cancer treatment? I am 41 years old and have been recently diagnosed...Reactions0reactionsComments4 repliesTreatment
Highest Steroid Dose You’ve Been PrescribedWhat is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in a crisis or significant flare? Have you been...Reactions0reactionsComments19 repliesTreatmentCrisisSymptoms
Do You Have a Preference of Older or Younger Doctors to Treat MG?Do you prefer a young or older healthcare professional to treat your MG? Age by no means determines how much knowledge or skill a doctor offers. And an individual could...Reactions0reactionsComments0 repliesHealthcare TeamTreatmentNewly Diagnosed
Soliris (Eculizumab) Outcome & Side EffectsEculizumab (Soliris®), https://myasthenia-gravis.com/biologics, is a Myasthenia gravis treatment approved for generalized myasthenia gravis (gMG)(https://myasthenia-gravis.com/generalized) & anti-acetylcholine receptor (AChR) antibody-positive (https://myasthenia-gravis.com/causes). Have you been treated...Reactions0reactionsComments0 repliesTreatmentRefractory MGGeneralized MG
What Main Quality Do You Look For in a DoctorWhen aiming to find a doctor that feels like a good fit, we must remember that health professionals are human and not perfect. Some have so much on their plate...Reactions0reactionsComments0 repliesNewly DiagnosedHealthcare TeamTreatment
Low-dose naltrexoneHello everyone There's someone here who has heard of or is taking LDN ?...Reactions0reactionsComments9 repliesGeneralized MGTreatment
Your Experience Terminating Being Under the Care of a DoctorMany of us have had at least one healthcare professional that we quit going to see because we believed they didn't provide quality care, listen, be respectful, be thorough, educate...Reactions0reactionsComments0 repliesNewly DiagnosedTreatmentHealthcare Team
Prosthetic Contact LensesHave you tried prosthetic contact lenses? Did they improve your Myasthenia gravis eye symptoms and vision? - Jodi, Team Member...Reactions0reactionsComments0 repliesVisionTreatmentCoping
Azathioprine (Imuran)Hello, I am newly diagnosed as of November '22. I am responding well to Pyridostigmine, with speech and swallowing problems greatly reduced. Now my neurologist wants me to take Azathioprine...Reactions0reactionsComments3 repliesNewly DiagnosedTreatment