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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Prevnar 20

Anyone get the prevnar 20 vaccine? Any problems?? Im scheduled for one at 1:00 pm today abd nervous. Help...

Difficulty swallowing while sleeping

I have difficulty every night swallowing phlegm approx 4 hours every night after I have fallen asleep. I wake up, drink a lot of water and go back to sleep...

blepharoptosis surgery for Ptosis

Hi, i am diagnosed with ocular myasthenia gravis and was given mestinon to help with my droppy eyelid. Aside from the medications, i am just wondering if anyone go for...

I've bee n prescribed CellCept

Anyone out there using cellcept now who can give me some information, etc??? Reading about all the possible side effects is lots of fun, if you know what I mean!...

A tuning point of healing MG

My healing journey reached a turning point when I first got in touch with self-healing Qigong meditation. I was in my friend’s car. His wife showed me the Chinese book...

Could I have MG?

Two weeks after receiving the COVID 19 booster dose, I began to feel dizzy and light-headed while walking. All of my blood work came back normal. I went to the...

Plasma aphersis

Wondering if anyone knows. If getting 10treaments of plasma aphersis (didn’t work) am I losing any of protection from the Covid shots had 3. Drs didn’t answer me either!!! Dr...

Diagnosis Eludes Us- So Frustrated

At 19 I noticed my daughter holding her chin up all of the time and she stopped singing around the house. She had trouble swallowing and chewing. Since then she...

Sleep hallucinations

I was diagnosed with MG back in 2016. I’ve had a thymectomy and I’ve been on IVIG infusion ever since. I know that there are several side effects from MG...

Connection between MG and the sPLA2-11a Enzyme?

See the link below which speaks to the impact of this enzyme which "has the capacity to bind to receptors at neuromuscular junctions and potentially disable the function of these...

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