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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Headaches or migraines as a primary or persistent/main symptom

Hi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is under researched like a lot of conditions and...

Had You Heard of Myasthenia Gravis Before Your Diagnosis?

When you were diagnosed, or a doctor proposed you could have Myasthenia gravis, had you heard of it before? If yes, from where? I was utterly clueless about what it...

Nightly cramps after fluoroquinolone antibiotics

I was having debilitating pain from cramps in the middle of the night. They continued no matter what I did. Although I was never actually diagnosed with anything, I did...

Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet?

Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet? --- Did this oversight result in a significant crisis or adverse reaction? --- What steps...

Have you or a loved one been involved in a Myasthenia gravis clinical trial or study?

Have you or a loved one been involved in a Myasthenia gravis clinical trial or study? (https://myasthenia-gravis.com/clinical/understanding) Your participation in these trials is incredibly valuable. It furthers our understanding of...

Pregnancy

I’m a looking for some information from mothers with MG on how the pregnancy went and how your child’s development has gone? Me and my partner have been looking into...

MG Treated with Steroids Induced Type 2 Diabetes?

Have you been treated with steroids (corticosteroids) and eventually were diagnosed with type 2 diabetes? What dose were you on of the steroids, and for how long? --- "Statistics show...

Struggling with Constipation?

Do you struggle with constipation, whether MG or MG treatment-related or due to another cause? Have you found anything that helps resolve the discomfort and situation?...

Neonatal MG and precautions taken by birth team and throughout pregnancy

For those who have experienced the unique journey of giving birth while managing MG, could you share the precautions, if any, that your birth team took for the potential of...

Birth Control and Myasthenia Gravis

Have you been on birth control for the entire time you had MG, or did you stop or start birth control while having MG? How does birth control affect your...

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