Will you take our In America survey and help others understand the true impact of MG?**The In America survey is now closed** To better understand the patient experience and realities of MG, we are fielding our Myasthenia Gravis In America survey. By taking this anonymous...Reactions 0 reactions Comments0 repliesAwareness
Emergency room- advocating for your MG and communicating with staffHave you had an emergency room visit since having MG? If you were unaware, many drugs can trigger or worsen MG symptoms and potentially lead to a crisis. Suppose you...Reactions 0 reactions Comments6 repliesAwarenessCrisisHealthcare Team
Today I am......https://myasthenia-gravis.com/content/images/2021/07/22/73db538822313815a0ef3868d90dd391_medium.jpg...Reactions 0 reactions Comments1 repliesAwareness
Facial swelling and throat closure I've been dealing with MG for about ten years. From extreme fatigue, drooling, drooping of my eyes and vision issues. This last exacerbation affected my throat , it closed cutting...Reactions 0 reactions Comments16 repliesAwareness
Possibility of only Ocular MG and not worse symptomsI've had a sleepy eye in one eye for 30+ years. I'm currently approaching 60. At least my wife has noticed that I've had a droopy eye for our entire...Reactions 0 reactions Comments4 repliesTips & AdviceAwarenessCoping
What Year Were You Diagnosed With Myasthenia Gravis?What year were you diagnosed with Myasthenia gravis? How long did it take to receive a diagnosis? What treatments were available to you at the time? Have you tried any...Reactions 0 reactions Comments68 repliesAwarenessDiagnosisTreatment
Had You Heard of Myasthenia Gravis Before Your Diagnosis?When you were diagnosed, or a doctor proposed you could have Myasthenia gravis, had you heard of it before? If yes, from where? I was utterly clueless about what it...Reactions 0 reactions Comments48 repliesAwarenessNewly DiagnosedDiagnosis
What is myasthenia gravis?What are some tips to help me with myasthenia gravis?...Reactions 0 reactions Comments1 repliesAwarenessAssistive DevicesGeneralized MG
Cane UseI was 'sort of' diagnosed with MG by an ophthalmologist who specialized in neurological eye issues -- awaiting blood test results for the Mayo Clinic. Anyway, when I walk my...Reactions 0 reactions Comments3 repliesAssistive DevicesCopingAwareness
Have you had an MG flare or crisis after a vaccination (not COVID)? Have you had an MG flare or crisis after a vaccination (not COVID)? https://myasthenia-gravis.com/vaccines If you are comfortable sharing, which vaccine was it? Vaccines can be of concern for those...Reactions 0 reactions Comments1 repliesTriggersTravelAwareness