I'm a Rag Doll...As I mentioned earlier, riding in a car is one of the hardest things for me to do since my diagnosis of seronegative myasthenia gravis and the use of... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments13 comments
The High Cost of MG Medication and Care...The medical bills that accumulated during my initial diagnosis and treatment of myasthenia gravis (MG) came to thousands of dollars.... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments2 comments
Imuran again!...20 yrs ago during the first year of my diagnosis my neurologist tried me on Imuran. I wasn't even done with 30 day supply when he stopped it....Reactions0reactionsComments1 replies
A Glimmer of Hope...Although they did put down a diagnosis of a seronegative myasthenia gravis exacerbation from their specialist, they still sent me home, unable to breathe... By Sally Farrier3 min readBookmark for laterReactions0reactionsComments3 comments
It's Not Always a Struggle with MG...Several months after my diagnosis, I was sent to a neurologist at Vanderbilt University Hospital.... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments4 comments
Trying to Stay Positive When Living with Myasthenia Gravis...Especially with the diagnosis of myasthenia gravis.... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments0 comments
Not All MG Support Groups Are Helpful...Those who fought the same battles with MG, the same symptoms, and possibly the same journey of trying to get a diagnosis and treatment!... By Sally Farrier3 min readBookmark for laterReactions0reactionsComments1 comments
Living with Myasthenia Gravis and My Mood Swings...However, the longer it’s been since my myasthenia gravis (MG) and hypothyroidism diagnosis, the more emotional I get and the easier I cry.... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments0 comments
What 3 Factors Worsen Your MG?...It has been as difficult getting adequate help for him as it has been for some of us with MG to get a correct diagnosis.... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments10 comments
Life as a Military Spouse Living with MG...Shortly after my myasthenia gravis diagnosis in 1995, I married my college sweetheart who was an Ensign in the US Navy.... By Claire Denton3 min readBookmark for laterReactions0reactionsComments0 comments
My Journey with Diets and Learning to Enjoy Food Again...In the overwhelming combination of pregnancy and a new diagnosis, I felt like I was drowning.... By Jessica Liao3 min readBookmark for laterReactions0reactionsComments2 comments
What were your immediate changes after your MG diagnosis?...As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...Reactions0reactionsComments9 repliesNewly DiagnosedSymptomsCoping
Had You Heard of Myasthenia Gravis Before Your Diagnosis?...How did it feel being diagnosed with a condition you were unfamiliar with? - Jodi, Team Member...Reactions0reactionsComments50 repliesDiagnosisNewly DiagnosedAwareness
Thanks to Social Media, I Met a Friend With MG in Person...She had emergency surgery to remove a tumor in her thymus gland that doctors thankfully detected when they gave her an MG diagnosis.... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments2 comments
Unending Fatigue with Myasthenia Gravis...But for me with the diagnosis of myasthenia gravis, I have found that stretching helps the muscles relax. It leaves me with less fatigue.... By Sally Farrier3 min readBookmark for laterReactions0reactionsComments3 comments
Encouragement from Strangers...All the ups and the downs and the twists and the turns ... and that's just to get a diagnosis, let alone daily life with MG.... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments4 comments
Finding Comfort When We Redefine Family...But after my MG diagnosis, I acknowledged a contradiction between the traditional definition of family and the personal boundaries they teach us to prioritize... By Jodi Enders2 min readBookmark for laterReactions0reactionsComments7 comments
How Common is Myasthenia Gravis?...This is probably due to better diagnosis that leads to better treatment and longer lives.... By Editorial Team 3 min readBookmark for later
My Journey Continues...My diagnosis was confirmed and all the other health issues were discussed. Steroids were a poor choice for me because of being pre-diabetic.... By Connie1 min readBookmark for laterReactions0reactionsComments2 comments
Living with Myasthenia Gravis...People with MG may be legally required to let their state motor vehicle department and insurance company know about their diagnosis.... By Editorial Team 3 min readBookmark for later
