Definition of seronegative MG
Does a negative antibody test mean you dont have MG? I still have lots of symptoms and the Pyridostigmine really helped, but the neurologist said the tests proved I dont have it because all the antibodies are negative.
I have had symptoms of myasthenia for over 20 years, I saw 7 different neurologists including two at the Mayo Clinic (over 20 years ago)
I was misdiagnosed numerous times, I responded to the treatments for myasthenia but after several tests was told that I didn’t have it because I didn’t have the antibodies in my blood.
At one point I was on prednisone 60 mg for 3 years, it controlled my symptoms but gave me sugar diabetes and glaucoma.
One day I was looking at a group chat and read a comment that said “You have to be your own advocate!”
I started reading and learned about seronegative myasthenia.
Now I know what I have and have approached my Dr and learned what I can and cannot do.
Don’t give up and don’t be afraid to be your own advocate!
Wow! My experience was so similar except it was over 30 years of negative antibodies but doing better on Mestinon. I was told it was all in my head, I was experiencing postpartum depression…..Finally I had a single fiber EMG. I had several in the past testing my legs with borderline results. This time a new neurologist tested around the eye. Bingo! Seronegative MG finally diagnosed! Guess I wasn’t crazy after all.
Hi
are you familiar with Seronegative MG? https://myasthenia-gravis.com/seronegative. It may be worth discussing with your doctor as a possibility. I hope you are able to find the answers and treatment you need! -Julie (team member)
