Diagnosis
Hello, I’m a 35 year old mum of two, and about 2 years ago I started noticing my eye lid on one side started dropping, i then began experiencing neck pain, my optician referred me urgently for a scan with suspected artery dissection. This was negative, I’ve since had arm weakness, loosing hand grip and slurring when tired, my eyelid now closes on its own by the evening and I have to wake it open again. I’ve since seen ophthalmology who said my sight is fine and he’s sure I’ve got myasthenia gravis, I’m already under neurology and waiting for a follow up. My myasthenia gravis bloods are negative but apparently that can happen with myasthenia Gravis. Has anyone else had a story similar to mine?? Thank you x
as a mom of two and managing these new symptoms, I can imagine it can be stressful. It sounds like you’ve got a good team helping you! While you’re waiting for others in the community to share their experiences, I thought you would find this article on Seronegative MG useful https://myasthenia-gravis.com/seronegative. I hope you get the answers and treatment you need to manage your symptoms. Please do not hesitate to reach out. Thinking of you, Julie (team member)
