New treatment (experimental?) Rystiggo
rozanolixizumab (brand name RYSTIGGO)
Has anyone had any experience with this?
I’m not questioning the validity of the trial, simply any after effects and risks and anything enlightening about this treatment. It’s a series of 6 weekly injections.
My neurologist has prescribed this and I’m his “beta tester” I do have a lot of faith and confidence in him and am quite excited to get this going. All mandated vaccines have been administered. Thanks in advance for any thoughts or advice
I’ve been taking rystiggo for more than a year. I’ve recently had to stop because I will be screening for a drug trial in which I need to have this out of my system. I had been taking it four weeks once a week and then four weeks with nothing and then four weeks once a week. The four weeks without were too hard on me so my doctor put me on Rystiggo infusions every other week. It helped tremendously with my energy levels, which was/is one of my main issues. I can live with the double vision and the slight slurring but the lack of energy and frequent exhaustion is my worst. I had no side effects with it, the infusion itself only takes about 12 minutes and I’ve taken it enough that I don’t stay for the observation. I had been in a trial testing delivery devices in which I had infusions every week for 18 weeks so I know that my body accepts this drug without side effects
I respond pretty quickly to drugs, and I noticed a difference within the first few infusions. I have seen no no downsides to this drug. I do some research on it and then give it a try. But I’m one of those who will try anything new hoping that it will help push me into remission or at least get me closer to a normal lifestyle.
Good luck with this and hope you’re sending you energy for wise decision-making and all that you need.
Love and Light
Frankexcellent information thanks so much for taking the time frank. Now I’m really excited!
