What was the first treatment your doctor prescribed for MG?
Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can provide valuable perspectives for other navigating similar journeys.
The Nurse practitioner keeps telling me that she thinks I am going into Crisis because suddenly all of the symptoms are far worse especially my breathing. I know your lungs are not supposed to be effected by Myasthenia Gravis but she tells me most people breath through their diaphram and lungs which is why they suffer breathing issues. I just had to go from 10mg Prednisone because at 15mg my eye pressure went up to 34 in each eye showing minor optic nerve damage which means I also have Gluacoma. I am not sure what other treatment they would use for this if I go into Crisis
diagnosed when close to crisis in bad flare… given 60mg pred but it weakened me initially so they did 5 day ivig privigen which helped alot with breathing. starting on cellcept. mestonin 60mg 3x day… which helps a lot with swallowing. fingers crossed the cellcept works… and i can start going off prednisone. got zofran in case i have nauseau from mmf cellcept. three weeks in to treatment and im stable but very weak. hands much better… hoping fir the best during a tricky period. thx!
Prednisone and Mestinon
Prednisone
