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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Coping

could anyone tell me what causes the myasthenia pot belly? Sue from Australia where there are no specialist myasthenia doctors....

Do you have flare symptoms that show up well after your exposure to a trigger?

My usual flare symptom is fatigue. But if my trigger exposure is more extreme it includes slight slurring and then my right eyelid droops. As a result, it’s been a...

Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet?

Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet? --- Did this oversight result in a significant crisis or adverse reaction? --- What steps...

The change from hot weather to cold

Cold weather - how does it effect MG?...

MG Awareness Month Forum!

What do you wish more people understood about Myasthenia Gravis? Whether it's about symptoms, treatment, daily challenges, or common misconceptions, share your thoughts below....

Have you or a loved one been involved in a Myasthenia gravis clinical trial or study?

Have you or a loved one been involved in a Myasthenia gravis clinical trial or study? (https://myasthenia-gravis.com/clinical/understanding) Your participation in these trials is incredibly valuable. It furthers our understanding of...

MG flare or emergency while out of state or country?

Have you had an MG flare or emergency while out of state or country? How did you handle the situation? --- If not, have you had a discussion with your...

What is your experience with mestinon for treating OMG?

Can you tell me whether anybody had a positive effect of mestinon for OMG?...

Methotrexate

Is anyone currently taking Methotrexate please? This has now been prescribed for me as I was experiencing bad side effects from taking Mycophenolate. Mainly numbness of hands and feet, but...

Blue Light Glasses

Blue light glasses, such as those from Foster Grant, Cyxus, Felix Gray, Gunnar Optiks, TIJN, EyeBuyDirect, and Warby Parker, are designed to reduce digital eye strain by blocking blue light...

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