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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Any side effects of long term IVIG treatment?

I am now 53 years old. I got diagnosed with Thymoma in Dec 2020. Had surgery in February 2021. After surgery, in April 2021 I started slurry speech and difficulty...

Eating with MG

I eat in smaller bites than I used to do. Cut up food in smaller pieces and take smaller bites. It helps when I have trouble swallowing, It does not...

Thymectomy via partial sternotomy

Hi there, I’m 20 and I’ve been diagnosed with MG for almost two years now and recently had a thymectomy via a partial sternotomy. I am day 6 post-op and...

One sided symptoms?

Is it possible to just experiment MG symptoms just on one side of your body?...

Intervenes or subcutaneous therapy

Has anyone been on Rystiggo?...

Seronegative

My legs have become very weak like noodles at times. I can no longer step up curbs or steps, my legs won't hold me. I have fallen a to least...

Stress

Some one was asking what I'm on. for treatment. I'm on Restiggo. Once a week for 6 weeks, then 4 weeks off. I had 2 round of that. I was...

Diet

Hi everyone, I wanted to check in with folks after reading some recent research on the positive impact of both a vegan and Keto diets on our immune systems. Has...

Here is when my symptoms started even thought I had no idea what was happening

Things that happened to me during and after Covid: (BTW, I got Covid twice) I developed sores that smelled like rotten meat that oozed constantly under my breast and on...

Here is where

Things that happened to me during and after Covid: (BTW, I got Covid twice) I developed sores that smelled like rotten meat that oozed constantly under my breast and on...

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