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Read conversations, start a discussion, and connect with others about myasthenia gravis.

ivig infusion and back surgery

I start IVIG Infusion on Monday 14, 2025. Five straight days then followed by "maintenance days" of IVIG. During the "maintenance days" , has anyone had back surgery ? How...

Deep frustration and sadness after finding the love of my life

Hi all, my name is Lucienne, i,m a 57 year old woman from The Netherlands. I,m so depressed and sad that i decided to search for a forum where i...

Do You Have a Caregiver?

Do you have a caregiver? Is your caregiver someone you hired or a loved one? What has been your experience? Any advice for someone looking for or considering the assistance...

MG with Shingles

Diagnosed over a year ago with Ocular which migrated to general MG around March of 2024. In March of this year i was diagnosed with Shingles off the lower left...

ultimaris - Anyone taking it ? How do you feel after

Hi i am due for my first infusion. What are the side effects ? Any idea ? can i go to work the next day or will this hit me...

Has anyone here experienced Myasthenia Gravis or is currently managing it? What symptoms did you notice first, and what treatment or lifestyle changes helped you the most?

Myasthenia Gravis is a rare autoimmune neuromuscular disorder that causes muscle weakness, often starting with drooping eyelids, double vision, or difficulty in speaking, chewing, or swallowing. The symptoms usually worsen...

Cellcept side effects

Hello, I’m in the UK and over here Cellcept is called Mycofenax. I ve just been put on this drug as I had to come off off Azothioprine as it...

I feel horrible - maybe detoxing system ?

Hi everyone, Like the title said, I need advice and or opinions in regards to my recent journey with MG medicines. Been on steroids for 6 months, not much progress...

Unusual symptom?

I was finally diagnosed with a muscle disease/disorder, non-specific, about 5 years ago after going to the neurologist for over 10 years. I have the muscle weakness, pain, double vision...

Anyone taking Ultomiris?

I’ve had (2) IVIg treatments and will have one more next week. I will be starting Ultomiris in May and going forward. Can anyone share experiences with this treatment? Whether...

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