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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Intervenes or subcutaneous therapy

Has anyone been on Rystiggo?...

Seronegative

My legs have become very weak like noodles at times. I can no longer step up curbs or steps, my legs won't hold me. I have fallen a to least...

Stress

Some one was asking what I'm on. for treatment. I'm on Restiggo. Once a week for 6 weeks, then 4 weeks off. I had 2 round of that. I was...

Diet

Hi everyone, I wanted to check in with folks after reading some recent research on the positive impact of both a vegan and Keto diets on our immune systems. Has...

Here is when my symptoms started even thought I had no idea what was happening

Things that happened to me during and after Covid: (BTW, I got Covid twice) I developed sores that smelled like rotten meat that oozed constantly under my breast and on...

Here is where

Things that happened to me during and after Covid: (BTW, I got Covid twice) I developed sores that smelled like rotten meat that oozed constantly under my breast and on...

Statins and Beta Blockers

I have read in various articles that taking Statins or Beta Blockers facilitates OMG. Discussed with Cardiologist and he became defensive that it was proven fact through research that they...

Is hip pain bothering you?

Hip pain can be a concerning symptom for those of us living with Myasthenia gravis. This pain can be attributed to muscle weakness, inactivity, or other underlying conditions that may...

Plasmapheresis and IVIG

I was 91 years when I was diagnosed with MG. Since then I have been treated with the usual oral meds including prednisone, mestinon, mycophenolate mofetil and infusions of Soliris...

IVIG Side Effects

IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...

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