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Read conversations, start a discussion, and connect with others about myasthenia gravis.

How can friends and family best support someone with MG?

How can loved ones support and comfort you? What strategies and tips do you have for communicating your needs with family and friends? For any caregivers, what are some ways...

Cuvitru vs Vivgard

Hi, I was diagnosed approx. 3 years ago with seronegative Myasthenia Gravis. I am wondering if anyone has experience being on Cuvitru and Vyvgart and pros or cons of each....

Loss of appetite

I have MG. I have had it for at least 3 years. About 6 months ago I started noticing that Had lost my appetite. Even for things like chocolate and...

Pain when swallowing.

I know that a lot of us have difficulty swallowing. When I am overtired or it’s time for medication I can have difficulty swallowing with pain, sometimes a good bit...

What Test(s) Were Used to Diagnose Your MG?

What tests did doctors run to diagnose your MG? Were imaging and bloodwork involved in your diagnosis?...

What were your immediate changes after your MG diagnosis?

As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...

What Part of Your Legs Do You Have Pain or Cramps Most Often?

What part of your legs do you most often experience pain or cramping? Are you currently on Pyridostigmine (Mestinon), or were you when you were experiencing this?...

Understanding Myasthenia Gravis: Symptoms and Diagnosis

Myasthenia gravis (MG) is a chronic autoimmune neuromuscular disorder characterized by varying degrees of skeletal muscle weakness. This condition occurs when the immune system produces antibodies that interfere with the...

First Symptoms

What were the first MG symptoms you experienced? How long did they persist before you were diagnosed? How long until you felt you possibly had something serious? - Jodi, Team...

Was Gaslighting Involved in Your Diagnosis Journey?

Did any health professionals dismiss your symptoms before you finally received the answers that you had an MG diagnosis? Were you ever told you were making up your symptoms or...

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