Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Has anyone here experienced Myasthenia Gravis or is currently managing it? What symptoms did you notice first, and what treatment or lifestyle changes helped you the most?

Myasthenia Gravis is a rare autoimmune neuromuscular disorder that causes muscle weakness, often starting with drooping eyelids, double vision, or difficulty in speaking, chewing, or swallowing. The symptoms usually worsen...

Cellcept side effects

Hello, I’m in the UK and over here Cellcept is called Mycofenax. I ve just been put on this drug as I had to come off off Azothioprine as it...

I feel horrible - maybe detoxing system ?

Hi everyone, Like the title said, I need advice and or opinions in regards to my recent journey with MG medicines. Been on steroids for 6 months, not much progress...

Unusual symptom?

I was finally diagnosed with a muscle disease/disorder, non-specific, about 5 years ago after going to the neurologist for over 10 years. I have the muscle weakness, pain, double vision...

Anyone taking Ultomiris?

I’ve had (2) IVIg treatments and will have one more next week. I will be starting Ultomiris in May and going forward. Can anyone share experiences with this treatment? Whether...

Methotrexate

Is anyone currently taking Methotrexate please? This has now been prescribed for me as I was experiencing bad side effects from taking Mycophenolate. Mainly numbness of hands and feet, but...

Vyvgart Side-Effects and Adverse Reactions

We understand that using Vyvgart (Efgartigimod alfa) can sometimes come with side effects. Could you share any experiences you've had with it? Did it lead to your doctor ordering you...

Medication & Treatment Side Effects

Have you ever stopped a medication or treatment because of side effects? If so, did you switch to a different medication or treatment? How did you approach the conversation with...

What is Leg systoms

I was diagnosed with my Myasinthla Gravis about a month ago. My symptoms were trouble, swallowing problems breathing slurred talk. droopy eyelid and crooked smile. My daughter thought I was...

How did you feel after IVIG

Hello, I just finished my first dose of IVIG. I’m curious how others felt after their first treatments and subsequent doses? I couldn’t swallow yesterday and started having excruciating pain...

Categories

Select a category to find topics that interest you.