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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Problems

I am nearly eighty and have a secondary illness I have to take medication for this 2nd illness which causes constipation etc. Since i cannot do much physical exercise, I...

IVIG Infusion

Hi, I am new to MG and this Forum. First forum I ever joined. I have read many on-line of various subjects when I am looking for info. I am...

IVIG Infusion for 5 days straight

That was a long week. Anyone have symptoms of yellow/brown colored urine after the 5 days of IVIG Infusion ? How to stay hydrated when MG seems to cause frequent...

red blotchy skin color after 5 days of ivig infusion

Did not have this symptom during the week of infusion, but today I am seeing this on my legs and arms. Any comments?...

Acute MG Attacks

I have recently had my first MG acute attack. It started with weakness in my hands, which don't feel attached to my arms, and I am dropping everything. Next, there...

ivig infusion and back surgery

I start IVIG Infusion on Monday 14, 2025. Five straight days then followed by "maintenance days" of IVIG. During the "maintenance days" , has anyone had back surgery ? How...

Deep frustration and sadness after finding the love of my life

Hi all, my name is Lucienne, i,m a 57 year old woman from The Netherlands. I,m so depressed and sad that i decided to search for a forum where i...

Do You Have a Caregiver?

Do you have a caregiver? Is your caregiver someone you hired or a loved one? What has been your experience? Any advice for someone looking for or considering the assistance...

MG with Shingles

Diagnosed over a year ago with Ocular which migrated to general MG around March of 2024. In March of this year i was diagnosed with Shingles off the lower left...

ultimaris - Anyone taking it ? How do you feel after

Hi i am due for my first infusion. What are the side effects ? Any idea ? can i go to work the next day or will this hit me...

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