My child has eye issues from Myasthenia Gravis, drooping eyelids and vision problems. Has anyone else’s child faced this too?Yes, my child went through something similar;Droopy eyelids and occasional double vision were tough. What helped us was a combination of rest, regular check-ups, and using special anti-glare lenses to...reactionsrepliesAwareness
Survey RE. Agent OrangeI had heavy exposure to ancient orange, stateside, and wound up with prostate cancer. None of my family members that I know of including Cousins have had cancer. The base...reactions1replyFriends & Family
PrismsI live in rural France and have ocular myasthenia gravis. My eyes are getting worse and the ophthalmologist here cannot get the prisms right. I'm wearing a pair of glasses...reactionsrepliesOcular MG
Tremors and Myasthenia GravisHas anyone here started experiencing tremors since their MG symptoms began? If so, where are you feeling them, and how severe are they? Do the tremors coincide with any other...reactions16repliesSymptomsSide EffectsTreatment
Reset activitiesWhat do you do to Reset? For me, it depends on my symptoms. I am very fatigued at the moment while fighting a cold and recovering from an adaptive yoga...reactionsrepliesCoping
Prosthetic Contact LensesHave you tried prosthetic contact lenses? Did they improve your Myasthenia gravis eye symptoms and vision? - Jodi, Team Member...reactions3repliesVisionTreatmentCoping
Personal Experiences with Mental Health Medications: Navigating the Journey to WellnessFor many individuals managing mental health conditions, medication can be a vital component of their treatment plan. However, the decision to start taking psychiatric medications is often accompanied by questions...reactions1replyAwarenessDepressionMental Health
Managing Stress & AnxietyFully eliminating life's stressors is nearly impossible, but trying to keep it at bay is helpful when managing MG symptoms. How do you practice self-care, mindfulness, and keeping stress/anxiety at...reactions14repliesTips & AdviceCoping
Refractory AChR+ gMG Flares: How Long Can They Last?Have had a very bad flare since exactly April 1, 2025 (no joke) and it still shows no sign of going away as of May 19. Haven't felt this bad...reactionsrepliesGeneralized MGMuscle WeaknessRefractory MG
new medicineHi. My doctor switched my medication from Mestinon to Azathioprine. Anybody else taking this? The side effects look grim. If you are taking it what, if anything, happened to your...reactionsrepliesSide EffectsTreatment