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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Congenital myasthenic syndrome

I'm a Brit in my mid-seventies living in Germany and have had CMG for the past 35 years. CMG means that I have a genetic defect, not an auto-immune disease...

Childhood Memories

Hello all. I am 40 years old and have had MG since 1989, when I was 6 years old. I was the youngest case of MG to be diagnosed in...

Could giving blood regularly reduce symptoms?

I have given blood regularly my whole life, but stopped after retirement and fatigue after giving. My double vision started after that, so wondering if giving blood may have helped...

Toll Prednisone Took on Your Body

What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...

Shaking (tremor) and myasthenia

Hello! I was diagnosed with myasthenia gravis almost a year ago. I had slurred speech, difficulty swallowing and chewing, and than after some time my hands would get weak. The...

Dealing with Glaucoma and MG?

Dealing with Glaucoma and MG? You're not alone. Living with Glaucoma, a condition that leads to vision loss and potential blindness, as well as MG-related double vision and drooping eyelids...

does anyone have fingers that suddenly curl up and hurts when you put them str8?

About 2 weeks ago a finger on my left had would spontaneously curl straightening it out was painful Now it feels something is wrong with the whole hand especially the...

How Do You Cope With Hot Temperatures?

Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the hot temperatures? When you are outside in the...

Surgery Yesterday

Hello, Just thought I'd share I had my thymectomy yesterday. Up walking pretty quick should be discharged tomorrow all things been well. Feel pretty drugged up. I am going to...

First Symptoms

What were the first MG symptoms you experienced? How long did they persist before you were diagnosed? How long until you felt you possibly had something serious? - Jodi, Team...

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