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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Burning pain/muscle weakness

Hello. Been suffering from a weakness that progressed over years from mild to disabling. The weakness is like the muscles just don't get enough nutrients/fuel to keep working like normal...

What is the most effective treatment for MG!

Got diagnosed 5 months ago and was started on 1 tablet of Pyridostigmine a day & now taking 4 tablets daily with 20mg of steroids which has given me severe...

Myasthenia Gravis

Hello Can somebody tell me if this is myasthenia? N-AChR (IIF) neg N-AChR 0.54 MuSK neg (Done by ELISA method, asking for RIA now) Thank you...

Ophthalmic Migraine

I was diagnosed with Ophthalmic Migraine (Ocular Migraine). So, my sight fades in my left eye and after maybe 10-20 minutes I regain my sight. It's only the lower part...

double vision

For dealing with MY Ptosis based, or caused, double vision, I initially found the closing of one eye gave me clear vision in the other eye. The problem with this...

Steroid-Induced Glaucoma

Steroids, a treatment used for Myasthenia gravis, can cause side effects, including increased pressure within the eye, also known as glaucoma. If left unaddressed, glaucoma can lead to outcomes such...

Mold Toxicity/Exposure and MG

Are you dealing with MG and suspect you’ve been exposed to mold, or have you had confirmed mold exposure in the past? Mold exposure or toxicity can lead to a...

Grocery Shopping Difficulties with MG

Grocery shopping with Myasthenia gravis (MG) necessitates the energy to get up and drive to the store. Even if you plan to use a store mobility scooter, it can still...

IVIG-Octagam

Hello! I am new to this forum and new to MG! I will share my story shortly but wanted to ask if anyone had tried Octagam IVIG? I tried Mestinon...

Have you experienced losing your voice?

Have you or anyone you know with MG ever experienced losing their voice, also known as aphonia? I'm curious to hear about your experiences. Any stories would be appreciated!...

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