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Read conversations, start a discussion, and connect with others about myasthenia gravis.

shoes and boots

Does anyone have good , lightweight shoes with great traction,not super expensive? Boots are also an issue. Have found zip, kind of light weight, sort of warm but during the...

Losing My Voice

I'm Seronegative and have been losing my voice on and off for the past couple of months with no changes in medication or other factors such as a secondary illness...

Syncope

Hi, Everyone! I'm so glad I found this group! I was diagnosed with MG in October 2024. My symptoms have progressed SO quickly. Most recently, I fainted following a feeling...

Cold weather

Does cold weather impact your myasthenia gravis symptoms? Do things like fatigue, muscle cramping/weakness get worse when the weather is colder? If so, what do you do to manage these...

Any side effects of long term IVIG treatment?

I am now 53 years old. I got diagnosed with Thymoma in Dec 2020. Had surgery in February 2021. After surgery, in April 2021 I started slurry speech and difficulty...

Eating with MG

I eat in smaller bites than I used to do. Cut up food in smaller pieces and take smaller bites. It helps when I have trouble swallowing, It does not...

Thymectomy via partial sternotomy

Hi there, I’m 20 and I’ve been diagnosed with MG for almost two years now and recently had a thymectomy via a partial sternotomy. I am day 6 post-op and...

One sided symptoms?

Is it possible to just experiment MG symptoms just on one side of your body?...

Intervenes or subcutaneous therapy

Has anyone been on Rystiggo?...

Seronegative

My legs have become very weak like noodles at times. I can no longer step up curbs or steps, my legs won't hold me. I have fallen a to least...

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