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Read conversations, start a discussion, and connect with others about myasthenia gravis.

How did you feel after IVIG

Hello, I just finished my first dose of IVIG. I’m curious how others felt after their first treatments and subsequent doses? I couldn’t swallow yesterday and started having excruciating pain...

Good News!

I was called by a neurology department at st. Claire hospital. They had a cancellation that needed to be filled! I was so relieved to get an appointment a month...

How long before you were diagnosed?

Hello, I am newly diagnosed and new to this forum. I started having double vision & a droopy eyelid in mid February and was diagnosed with MG 2-3 weeks later...

Do you have treatment goals?

Do you and your neurologist have measurable treatment goals? I know not everyone does, but because MG is not curable, it seems to me treatment should have some measurable objectives...

Is a wheelchair in my future?

I am 75 with a moderately controlled case of gMG. I can still walk around the house. I can go outside and go to small stores on a rolling walker...

Just had 1st ivig infusion-any success stories?

Hello, I am newly diagnosed with MG (2 months ago), neuro put me on pyridostigmine right away. It took about 2 weeks to start working and whether coincidental or not...

Double vision

Diagnosed in 2024. I have no peripheral vision and have double vision always minimum leg cramps. What do people take for vision?...

anyone get glasses for your double vision?

My opthamologist who diagnosed my MG wants to stay involved in my treatment, he was saying he would do botox on my eye to make the muscle wake up that...

Newly Diagnoses

I have had pain in legs and feet prior to being newly diagnosed with MG. I have been seeing a neurologist for 15 years after my familyn physician thought I...

In remission from GMG by fixing diet

Developed GMG symptoms - double vision, drooping eyelid, loss of strength / endurance, etc. - in late 2003 when I was in my mid-40s and was diagnosed early 2004. Fortunately...

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