Have you had an MG flare or crisis after a vaccination (not COVID)? Have you had an MG flare or crisis after a vaccination (not COVID)? https://myasthenia-gravis.com/vaccines If you are comfortable sharing, which vaccine was it? Vaccines can be of concern for those...Reactions 0 reactions Comments1 repliesTriggersTravelAwareness
OMG RECURENCEHello, My Occular Myasthenia Gravis trigger last October 8, 2023 due to STREES on financial status & insomnia for months even my neurologist prescribed melantonin, I could hardly slept then...Reactions 0 reactions Comments9 replies
MG RECURENCEHELLO, WHEN I WAKEUP THIS MORNING, IT SEEMS I HAVE SLIGHTLY DOUBLE VISION WHILE STILL LYING DOWN THE BED, I HAVE BEEN DIFFICULTY SLEEPING EVERY NIGHT. I HOPE IT WILL...Reactions 0 reactions Comments2 replies
Confidence in your treatment regimen?How easily or difficult is it for you to have faith and confidence in your treatment regimen? Has this changed over time? Do you doubt faith in doctor decisions or...Reactions 0 reactions Comments2 repliesTreatmentRemissionHealthcare Team
Huperzine-AI have found that Huperzine-A (a Chinese herb) was originally found to be of help with Alzheimer, has shown some value with MG as well ... Does anyone have any...Reactions 0 reactions Comments0 replies
SleepI am a 21-year MGer and sleep 4 - 5 hours a night. Even though I use a CPAP, I'm in a real bind. What suggestions do you have?...Reactions 0 reactions Comments0 repliesSleep
One word to describe the past monthDescribe how you have felt this past month with one word....Reactions 0 reactions Comments1 repliesSymptomsAwarenessFriends & Family
More patient control of Pyridostigmine (Mestinon) dosing?The acetylcholinesterase-inhibition properties of Pyridostigmine (pyri) only last a handful of hours. The doctor's Rx very specifically regulates the dosing period and amount. For example, a common Rx for pyri...Reactions 0 reactions Comments5 replies
Droopy EyelidHi All, I am new here but wanted to share this. Also I am not saying it will work for all but it has majorly helped me. My doctor gave...Reactions 0 reactions Comments1 repliesOcular MG
Neuromuscular Blocking Medication Triggered MG SymptomsNeuromuscular blocking drugs are administered to patients during surgery as muscle relaxants to prevent muscle movement. These medications are scientifically recommended against use in myasthenia gravis patients and, if necessary...Reactions 0 reactions Comments0 repliesSurgeryTriggersCrisis