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Read conversations, start a discussion, and connect with others about myasthenia gravis.

MG with a colostomy

I am wondering if anyone has an ostomy of any kind? I am having a permanent Colostomy with rectum removed in 5 days. It will be a 4–6-hour surgery. And...

Tips for sinus issues

What medication to take for sinus issues...

MG Treated with Steroids Induced Type 2 Diabetes?

Have you been treated with steroids (corticosteroids) and eventually were diagnosed with type 2 diabetes? What dose were you on of the steroids, and for how long? --- "Statistics show...

Speech

Hi, I am from Pakistan, What you all do for speech-improvement?...

Using Azathioprine long term for MG

Was diagnosed with MG at 65… Started with Mestinon and Prednisone. Ocular only..for 4 years took Pyridostigmine maybe twice a year mild flare ups. (Off prednisone) I am 73 now...

MG and dropped head

Hi all! I wanted to ask if anyone has had any experience with a dropped head because of MG? I’ve only been on Mestinon for 2 weeks but see no...

In remission

I was diagnosed with in early 2020 and had a successful thymectomy in 2021. I was initially given prednisone but had severe swelling of legs ankles and feet so with...

Misunderstood

Even Doctor's that seem to think they know how to handle this disease are often perplexed. They ask me things like the next time it gets bad go to the...

MG and weight loss medication

If you have MG, are there risks taking the popular drugs for weight loss and A1C like Ozempic, Mounjaro, etc?...

Using foods that contain magnesium (e.g. basil)

Many myasthenia gravis websites tell us to avoid consuming magnesium because it can weaken muscles and potentially lead to a myasthenic crisis. However, I wondered whether that applied to foods...

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