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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Incontinence

I have been on steroids for 3years can this cause incontinence with my mysenia gravis...

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Does Anything Help Your Double Vision And/or Droopy Eyes?

Do you have Myasthenia gravis symptoms of diplopia (double vision) or ptosis (drooping eye)? Has anything helped you? Medication, surgery, tape, glasses, contacts, eye drops, etc.? - Jodi, Team Member...

Meds for ocular myasthenia gravis

I developed double vision and a droopy eyelid direction after my 2nd cataract surgery. It took 7 months and 5 providers later to diagnose my ocular mg (no other generalized...

ptosis improvement through Levator advancement surgery?

I have had generalized MG for 17 years and after years of going up and down on prednisone for ptosis I am considering having an eyelid lift surgery, called levator...

Diagnosis

Hello everyone, I live in Toronto, Ontario (Canada) and have been struggling with my health for years now. In most cases I wait several months to a year + to...

Slurred speech

Does anyone have slurred speech feeling that your tongue is numb or burning? If so, what was prescribed to help?...

Alternative medication

I’m a little curious I was read an article about ivermectin and was wondering if anybody has been using it or use it to control their MG. I am considering...

Unexplained Symptoms that are Not Characteristic MG Symptoms?

What unexplained symptoms do you have that are not characteristic MG symptoms?...

Treatment Question

I have had double vision for around 6 months. I have been tested for MG twice with blood work that came back negative both times. My nuero Opthalmologist is very...

A little denial

Hi, I was diagnosed in January 2025. I have been on Mestinon 60 mg 3 X a day. At the end of November, I started having increased blurred vision and...

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