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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Muscle Spasms with and without Pyridostigmine (Mestinon)

Have you taken mestinon and experienced muscle spasms? Did your doctor have you suspend the use of the treatment? Have you noticed muscle spasms even without being on mestinon? Muscle...

How are folks able to tolerate Mestinon (Pyridostigmine)?

The doctor was having me take 60mg 3 times daily. Leg cramps and gut issues ended that. Does anyone have any tricks to try so I can get back on...

Intravenous immunoglobulin treatment (IVIG)

Intravenous immunoglobulin (IVIG) is a treatment option for many people with autoimmune diseases. IVIG can be a treatment for myasthenia gravis (MG). Have you ever gotten IVIG before? If so...

Weight gain, anybody?

I'm becoming frantic over the fact that I've gained about 15 pounds (~7 kg) since I was diagnosed in January 2022 and more specifically since I started prednisone, which I've...

Newly diagnosed

I recently went toa neurologist because of amyriad off what to me were unrelated symptoms:. Balance issues, hands tremor, double vision, droopy eyelids, coughing when lying down and sometimes when...

Living with MG since March 2024

Life took a turn when diagnosis with MG. Survived a major flare following by thymectomy within half a year. Coping with recovery now but it's have been up and down...

Outsmart MG

Neck weakness-Anyone else have it? For the first time ever, I went to get out of bed last week and my body went one way and my neck pretty much...

Prednisone problems

Hello! I was on Prednisone for about a year and oh boy did it ever make me sick! I could barely get out of bed. My doctor told me Never...

How did you navigate your first big holiday after your diagnosis?

As the holiday season is finishing up, I remembered when I was diagnosed it was 2020 so, like most people, we didn't do our big family get-togethers, like we'd normally...

How do you deal with fatigue?

Hello everyone! I am curious and would like to hear about the different ways you deal with/ handle being fatigued. As for me I always seem to have a roller...

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