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Read conversations, start a discussion, and connect with others about myasthenia gravis.

freezing this winter

Any one else freezing this winter? Read where folks have problems with the heat, but I am having problems with cold. Wife keeps the house about 70, and only time...

Help! I have seronegative Myasthenia Gravis and Rheumatoid Arthritis! I am getting worse! My Neurologist doesn't listen to me!

I am desperate to find a doctor who cares.. Getting weaker and very dizzy and fall a lot and am in pain. Have seronegative MG with breathing, talking, swallowing and...

Have you heard about these latest FDA-approved MG treatments?

Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...

I’ve been recently been diagnosed with MG and I am overwhelmed.

I never think I would taking the medicine prescribed. I feel I am having Chemotherapy and the side effects scare me....

Colitis-possibly from Prednisone or IVIG

I just finished my second round of IVIG and spent the day in the hospital the next day. I was diagnosed with Colitis. ER doctor said it could be from...

Hearing Aids

I have vision problems with MG, now I find out it is the reason I need Hearing Aids....

Swallowing-Lungs-kidneys with Myasthenia Gravis

I have lung failure with my Myasthenia Gravis. I use to be incubated due to the failure. When nonvolatile acids that are usually moved by the lungs, and must be...

Myasthenia

My 81 year old mom was recently diagnosed after being sick for almost 4 years. She has now been on medicine (mestinon) for 2 weeks. Has anyone taking this medicine...

Occular MG moving into generalized

Hi, Diagnosed with MG after double vision and thymoma discovered in 2018. Thymoma was removed and I went on Mestinon. Eyelid improved but in 2020 i stopped taking the Mestinon...

MG Conference

Is anyone going to the MG Conference at the end of March? Has anyone ever attended one before?...

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