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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Vyvgart Side-Effects and Adverse Reactions

We understand that using Vyvgart (Efgartigimod alfa) can sometimes come with side effects. Could you share any experiences you've had with it? Did it lead to your doctor ordering you...

Stress a massive factor.

I was diagnosed nearly 18 months ago and ,wow,how it has changed my life. Not knowing how I would cope, financially worried as I had to leave my job. But...

Have all of the symptoms of MG but every test coming back negative so far!

I would greatly appreciate your help! I have been having symptoms of Generalised MG and am now in a wheelchair 90% of the time. I am off work, have been...

Seronegative/chemical/toxin exposure

Recently it has come out that there was a company less than a mile away from where I grew up that was dumping toxic chemicals. Many people have had cancer...

Ptosis question

The more I look at my eyelids sometimes I wonder. Have people noticed a difference with how long they need to rest their eyelids if they pick up the ptosis...

Recently diagnosed

Just have been diagnosed with MG a month ago. Having a lot of trouble sleeping at night and saliva at nite keeps me awake. Has anyone had any experience with...

MG in the media

Feeling conflicted having just watched Madame Web on Netflix. Good to have main stream exposure, but I believe like most streams a bit of misinformation. I hope the attempt was...

Has anyone's doctors suggested these?

Hi all, recently my MG team have started bringing up a couple of things/ideas and I wondered if anyone had any experience with any of these. One was a temporary...

Dramatic changes in MG symptoms for the better

I was diagnosed in December 2023 with GM at the time it was ocular with a continuous migrain rtype headache using Pyridostigmine and propranolol royally eliminated that . I then...

How can friends and family best support someone with MG?

How can loved ones support and comfort you? What strategies and tips do you have for communicating your needs with family and friends? For any caregivers, what are some ways...

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