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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Early Undiagnosed Symptoms?

I am curious to know whether others with MG experienced early symptoms or had a close relative with a neurological illness? Many years ago I was told that I have...

MG reactions to Stem Cell therapy

My husband was diagnosed with MG in 2019. He had a major crisis 2 months after diagnosis. He is better now but gets weak faster and it's taking longer for...

How long before it’s really bad

Has anyone used vyvgart...

Shaking (tremor) and myasthenia

Hello! I was diagnosed with myasthenia gravis almost a year ago. I had slurred speech, difficulty swallowing and chewing, and than after some time my hands would get weak. The...

Not sure what are flate ups

What is flare ups,how do you know I'm totally confused with Myasthenia gravis...

Who has had Complete respiratory failure with no warning?

Feb 2024 I had to have a colostomy , the next day , without shortness of breath preceding , I just stopped breathing completely nothing in or out! had the...

Cuvitru vs Vivgard

Hi, I was diagnosed approx. 3 years ago with seronegative Myasthenia Gravis. I am wondering if anyone has experience being on Cuvitru and Vyvgart and pros or cons of each....

Loss of appetite

I have MG. I have had it for at least 3 years. About 6 months ago I started noticing that Had lost my appetite. Even for things like chocolate and...

Pain when swallowing.

I know that a lot of us have difficulty swallowing. When I am overtired or it’s time for medication I can have difficulty swallowing with pain, sometimes a good bit...

What Test(s) Were Used to Diagnose Your MG?

What tests did doctors run to diagnose your MG? Were imaging and bloodwork involved in your diagnosis?...

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