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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Mold Toxicity/Exposure and MG

Are you dealing with MG and suspect you’ve been exposed to mold, or have you had confirmed mold exposure in the past? Mold exposure or toxicity can lead to a...

Grocery Shopping Difficulties with MG

Grocery shopping with Myasthenia gravis (MG) necessitates the energy to get up and drive to the store. Even if you plan to use a store mobility scooter, it can still...

IVIG-Octagam

Hello! I am new to this forum and new to MG! I will share my story shortly but wanted to ask if anyone had tried Octagam IVIG? I tried Mestinon...

Have you experienced losing your voice?

Have you or anyone you know with MG ever experienced losing their voice, also known as aphonia? I'm curious to hear about your experiences. Any stories would be appreciated!...

MG Crisis-What Triggered Yours?

Have you had an MG crisis (https://myasthenia-gravis.com/crisis)? If yes, do you have an idea of what triggered it?...

shoes and boots

Does anyone have good , lightweight shoes with great traction,not super expensive? Boots are also an issue. Have found zip, kind of light weight, sort of warm but during the...

Losing My Voice

I'm Seronegative and have been losing my voice on and off for the past couple of months with no changes in medication or other factors such as a secondary illness...

Syncope

Hi, Everyone! I'm so glad I found this group! I was diagnosed with MG in October 2024. My symptoms have progressed SO quickly. Most recently, I fainted following a feeling...

Cold weather

Does cold weather impact your myasthenia gravis symptoms? Do things like fatigue, muscle cramping/weakness get worse when the weather is colder? If so, what do you do to manage these...

Any side effects of long term IVIG treatment?

I am now 53 years old. I got diagnosed with Thymoma in Dec 2020. Had surgery in February 2021. After surgery, in April 2021 I started slurry speech and difficulty...

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