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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Cellcept side effects

Hello, I’m in the UK and over here Cellcept is called Mycofenax. I ve just been put on this drug as I...

I feel horrible - maybe detoxing system ?

Hi everyone, Like the title said, I need advice and or opinions in regards to my recent journey with MG medicines. Been...

Unusual symptom?

I was finally diagnosed with a muscle disease/disorder, non-specific, about 5 years ago after going to the neurologist for over 10 years...

Anyone taking Ultomiris?

I’ve had (2) IVIg treatments and will have one more next week. I will be starting Ultomiris in May and going forward...

Methotrexate

Is anyone currently taking Methotrexate please? This has now been prescribed for me as I was experiencing bad side effects from taking...

Vyvgart Side-Effects and Adverse Reactions

We understand that using Vyvgart (Efgartigimod alfa) can sometimes come with side effects. Could you share any experiences you've had with it?...

Medication & Treatment Side Effects

Have you ever stopped a medication or treatment because of side effects? If so, did you switch to a different medication or...

What is Leg systoms

I was diagnosed with my Myasinthla Gravis about a month ago. My symptoms were trouble, swallowing problems breathing slurred talk. droopy eyelid...

How did you feel after IVIG

Hello, I just finished my first dose of IVIG. I’m curious how others felt after their first treatments and subsequent doses? I...

Good News!

I was called by a neurology department at st. Claire hospital. They had a cancellation that needed to be filled! I was...

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