Muscle WeaknessI have been falling for 3 years, in the last 2 years I've fallen 22 time. With good luck so far haven't broken anything. But I am afraid to go...Reactions0reactionsComments8 repliesExerciseMuscle WeaknessDriving
What Percentage of Your Day Is Impacted by MG?What percentage of your average day is impacted by MG? This could be a time when MG is limiting you or your energy, when your symptoms are acting up, when...Reactions0reactionsComments2 repliesSymptomsWork & EmploymentMuscle Weakness
Cellcept side effectsHello, I’m in the UK and over here Cellcept is called Mycofenax. I ve just been put on this drug as I had to come off off Azothioprine as it...Reactions0reactionsComments3 repliesSide Effects
Zilbrysq (Zilucoplan) users and past users, how has your experience been with Zilbrysq? Hi there, fellow Zilbrysq (Zilucoplan) users and past users! How has your experience been with Zilbrysq? Did you notice improvement with zilbrysq? If so, how long did it take to...Reactions0reactionsComments0 repliesRefractory MGTreatmentTips & Advice
Rystiggo (Rozanolixizumab-noli) users and past users, how has your experience been with Rystiggo? Hi there, fellow Rystiggo (Rozanolixizumab-noli) users and past users! How has your experience been with Rystiggo? Did you notice improvement with rystiggo? If so, how long did it take to...Reactions0reactionsComments0 repliesRefractory MGTreatmentTips & Advice
Vyvgart Hytrulo (Efgartigimod alfa and hyaluronidase-qvfc) users and past users, how has your experience been with Vyvgart Hytrulo? Hi there, fellow Vyvgart Hytrulo (Efgartigimod alfa and hyaluronidase-qvfc) users and past users! How has your experience been with Vyvgart Hytrulo? Did you notice improvement with vyvgart hytrulo? If so...Reactions0reactionsComments0 repliesRefractory MGTreatmentTips & Advice
Rituxan (Rituximab) users and past users, how has your experience been with Rituxan? Hi there, fellow Rituxan (Rituximab) users and past users! How has your experience been with Rituxan? Did you notice improvement with Rituxan? If so, how long did it take to...Reactions0reactionsComments0 repliesRefractory MGTreatmentTips & Advice
Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris? Hi there, fellow Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris? Did you notice improvement with Ultomiris? If so, how long did it take to...Reactions0reactionsComments0 repliesTreatmentRefractory MGTips & Advice
Symptoms: shakiness?One of my most irksome symptoms is extreme shakiness, especially in my hands, but occasionally through my whole body. I’ve been surprised that there haven’t been others complaining about shakiness...Reactions0reactionsComments4 replies
Losing My VoiceI'm Seronegative and have been losing my voice on and off for the past couple of months with no changes in medication or other factors such as a secondary illness...Reactions0reactionsComments0 repliesSeronegativeSpeech