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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Plasmapheresis and IVIG

I was 91 years when I was diagnosed with MG. Since then I have been treated with the usual oral meds including prednisone, mestinon, mycophenolate mofetil and infusions of Soliris...

What’s something you wish your doctor knew about living with MG?

It’s often difficult to express our challenges in the short appointments that we have to meet with a medical professionals. What are the top three things that you wish your...

How Do You Use Mindfulness to Navigate Myasthenia Gravis?

Mindfulness has helped me approach life with MG with more patience, self-compassion, and resilience. From practicing acceptance to finding gratitude in the small moments, these principles have truly changed how...

Mestenon treatment for OMG

My first Neuro doctor put me on 60 mg three times a day 8 hrs apart. Did not work . Prednisone treatment worked at 40mg but when stepped down to...

Surgery Yesterday

Hello, Just thought I'd share I had my thymectomy yesterday. Up walking pretty quick should be discharged tomorrow all things been well. Feel pretty drugged up. I am going to...

Myasthenia Gravis post COVID Vaccination

Hello All, I want to share my story and wants to check if you have similar experience. And, wants to understand what's coming-up in the future. I have taken first...

Apherisis Poem:Wash, Rinse, Repeat

By Laurie-May, 2024 Some days I go in with a smile Can even saunter in with style! However, primarily I’m there because I’m near the end. Previous treatment fading-now only...

Accountant with OMG

Just diagnosed this year with Occular MG. As an accountant my eyes are very important to me. I already find myself working considerably slower. It is taking along time to...

MG Story

Hey everyone hope everything going well I stumbled across this site awhile ago and noticed I'm not alone with this rare thing almost nobody understands at my age of 30...

traveling with MG

I was diagnosed in July 2024 with ocular mg. I had double vision symptoms. Since I started on mestinon it has controlled the double vision. Now my only symptoms are...

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