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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Living with MG since March 2024

Life took a turn when diagnosis with MG. Survived a major flare following by thymectomy within half a year. Coping with recovery now but it's have been up and down...

Outsmart MG

Neck weakness-Anyone else have it? For the first time ever, I went to get out of bed last week and my body went one way and my neck pretty much...

Prednisone problems

Hello! I was on Prednisone for about a year and oh boy did it ever make me sick! I could barely get out of bed. My doctor told me Never...

How did you navigate your first big holiday after your diagnosis?

As the holiday season is finishing up, I remembered when I was diagnosed it was 2020 so, like most people, we didn't do our big family get-togethers, like we'd normally...

How do you deal with fatigue?

Hello everyone! I am curious and would like to hear about the different ways you deal with/ handle being fatigued. As for me I always seem to have a roller...

Unprofessional/rude healthcare professionals

I had a neurologist appointment today with a new neurologist I'd not met before and it was such a bad appointment. I'm the kind of person (and I also advocate...

Emergency room- advocating for your MG and communicating with staff

Have you had an emergency room visit since having MG? If you were unaware, many drugs can trigger or worsen MG symptoms and potentially lead to a crisis. Suppose you...

Cataracts

I need cataract surgery in my left eye. Has anyone done this and what was the result? I think I have gMG but have some double vision and a LOT...

Could Quercetin and Zinc supplements cause an overactive autoimmune response that looks like Myasthenia Gravis?

My MG symptoms started after covid, but also after I began taking Quercetin and Zinc supplements....

Dizziness

Hi! I was diagnosed with MG in August. Dizziness made me unable to walk without looking like a stroke victim and that’s what the ER thought was the problem. I...

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