What were your immediate changes after your MG diagnosis?As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...Reactions0reactionsComments9 repliesNewly DiagnosedSymptomsCoping
How do you manage MG speech problems?Have you ever experienced speech problems with MG? Speech symptoms can include slurred speech, trouble forming words, a monotone voice, and more. Tell us what it's like. How do you...Reactions0reactionsComments19 repliesSymptomsTips & AdviceCoping
How did you navigate your first big holiday after your diagnosis?As the holiday season is finishing up, I remembered when I was diagnosed it was 2020 so, like most people, we didn't do our big family get-togethers, like we'd normally...Reactions0reactionsComments3 repliesCopingNewly DiagnosedFriends & Family
Unprofessional/rude healthcare professionals I had a neurologist appointment today with a new neurologist I'd not met before and it was such a bad appointment. I'm the kind of person (and I also advocate...Reactions0reactionsComments2 repliesHealthcare TeamCoping
Prosthetic Contact LensesHave you tried prosthetic contact lenses? Did they improve your Myasthenia gravis eye symptoms and vision? - Jodi, Team Member...Reactions0reactionsComments2 repliesVisionTreatmentCoping
DizzinessHi! I was diagnosed with MG in August. Dizziness made me unable to walk without looking like a stroke victim and that’s what the ER thought was the problem. I...Reactions0reactionsComments2 repliesNewly DiagnosedSymptomsCoping
MG FlareWhat are some ways you get through a Myasthenia flare? It's so disappointing after things have been doing better for a while. I'm reading a lot and thankful that I...Reactions0reactionsComments5 repliesCoping
Three crisis in 5 monthsMy Mg manifests itself in my ability to be able to walk along with vision neck muscle and not to much in facial events. It also steals my ability to...Reactions0reactionsComments8 repliesCopingMuscle WeaknessSpeech
I can’t talk for myself but I will tell you a true fact As you may or may not know but I’m from Sydney Australia & this is my story or should I say a fellow MGer, I met this friend in Hospital...Reactions0reactionsComments0 repliesTips & AdviceCopingAutoimmune Diseases
How do you cope with fatigue?Studies show that fatigue can have major effects in people with autoimmune diseases like MG....Reactions0reactionsComments16 repliesCopingSymptoms