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Read conversations, start a discussion, and connect with others about myasthenia gravis.

My neck gets so tired and tight.

I have mg. Dr will say that there isn't any pain with mg. Than why does my neck and shoulders hurt so bad? It's like I've been trying to hold...

Refractory AChR+ gMG Flares: How Long Can They Last?

Have had a very bad flare since exactly April 1, 2025 (no joke) and it still shows no sign of going away as of May 19. Haven't felt this bad...

Neurologist concerns? I have them.

I'm frustrated. I was diagnosed with MG 2 years ago when I was beginning a crisis. My eye drooping and double vision perplexed the best of them til my ophthalmologist...

Incontinence

I have been on steroids for 3years can this cause incontinence with my mysenia gravis...

Tremors, muscle twitches

Hello dear forum friends. I’m a newbie here and learning a lot from you all. I am AChR positive, bulbar presentation with lost voice and swallowing issues. Did 5 plasmapheresis...

What Percentage of Your Day Is Impacted by MG?

What percentage of your average day is impacted by MG? This could be a time when MG is limiting you or your energy, when your symptoms are acting up, when...

Shaking (tremor) and myasthenia

Hello! I was diagnosed with myasthenia gravis almost a year ago. I had slurred speech, difficulty swallowing and chewing, and than after some time my hands would get weak. The...

Difficulty Layering Clothes with Myasthenia Gravis

Having just returned from a chilly adventure up north, I couldn’t help but reflect on how much I take my warm Florida weather for granted. The struggle of layering clothing...

Three crisis in 5 months

My Mg manifests itself in my ability to be able to walk along with vision neck muscle and not to much in facial events. It also steals my ability to...

My story

I am 65 years old. I was diagnosed with Myasthenia Gravis almost 3 years ago. It started 3 years ago with double vision. I didn’t know until 4 months later...

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