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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Not sure what are flate ups

What is flare ups,how do you know I'm totally confused with Myasthenia gravis...

Who has had Complete respiratory failure with no warning?

Feb 2024 I had to have a colostomy , the next day , without shortness of breath preceding , I just stopped breathing completely nothing in or out! had the...

Cuvitru vs Vivgard

Hi, I was diagnosed approx. 3 years ago with seronegative Myasthenia Gravis. I am wondering if anyone has experience being on Cuvitru and Vyvgart and pros or cons of each....

Loss of appetite

I have MG. I have had it for at least 3 years. About 6 months ago I started noticing that Had lost my appetite. Even for things like chocolate and...

Pain when swallowing.

I know that a lot of us have difficulty swallowing. When I am overtired or it’s time for medication I can have difficulty swallowing with pain, sometimes a good bit...

What were your immediate changes after your MG diagnosis?

As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...

What Part of Your Legs Do You Have Pain or Cramps Most Often?

What part of your legs do you most often experience pain or cramping? Are you currently on Pyridostigmine (Mestinon), or were you when you were experiencing this?...

Understanding Myasthenia Gravis: Symptoms and Diagnosis

Myasthenia gravis (MG) is a chronic autoimmune neuromuscular disorder characterized by varying degrees of skeletal muscle weakness. This condition occurs when the immune system produces antibodies that interfere with the...

First Symptoms

What were the first MG symptoms you experienced? How long did they persist before you were diagnosed? How long until you felt you possibly had something serious? - Jodi, Team...

What are the early symptoms of Myasthenia Gravis, and how can they be managed effectively?

Myasthenia Gravis (MG) often begins with symptoms that may seem mild but can gradually worsen. Early signs include muscle weakness, especially in the eyes, face, and throat, which may cause...

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