Could I have this disease?I'm almost 56 years old and lately I have little to no energy, I've always been energetic some shortness of breath should I be concerned and should I try to...Reactions 0 reactions Comments3 repliesAutoimmune Diseases
Myasthenia Flare?I currently have ocular myasthenia. Thursday I ended up at the ER. My mouth was moving weird, my vision impaired, difficulty swallowing and walking. When doing a CT Scan, I...Reactions 0 reactions Comments2 repliesDiagnosis
Waiting on lab results and not fully diagnosedToday is my first day on this forum. I need some advice. I have been symptomatic since Janaury. I have seen every specialist known to man. We have ruled out...Reactions 0 reactions Comments4 replies
Does a Negative ANA mean a negative for MG or are the specific antibody tests different.Hello, I have been having crazy and life changing symptoms within a week after my vaccine in 2021 ( Pfizer). Blurred/double vision Eyelid droop-steroids help Weakness Tremors Cognitively I feel...Reactions 0 reactions Comments1 repliesAutoimmune DiseasesTips & AdviceNewly Diagnosed
Is mestinon not available anymore? I have been taking mestinon for ocular MG since about 2012. I’ve been told that it’s been stopped being made and I can’t get anymore. I’m waiting to be reviewed...Reactions 0 reactions Comments1 replies
Dramatic changes in MG symptoms for the better I was diagnosed in December 2023 with GM at the time it was ocular with a continuous migrain rtype headache using Pyridostigmine and propranolol royally eliminated that . I then...Reactions 0 reactions Comments2 repliesAutoimmune Diseases
Stomach nausea and painMy husband was diagnosed with MG about 6 months ago and since then he's had problems with his stomach with nausea and pain could this be a side effect from...Reactions 0 reactions Comments5 replies
MG TerminologyI bet we all remember the first few years after being diagnosed with Myasthenia gravis and constantly finding new MG-related terms we were unfamiliar with. Many of us are still...Reactions 0 reactions Comments2 repliesDiagnosisAwarenessNewly Diagnosed
Immunotherapy (stem cell)Does anyone have experence treating autoimmune MG with immunotherapy (stem cell) treatments simular to what is used in cancer treatment? I am 41 years old and have been recently diagnosed...Reactions 0 reactions Comments4 repliesTreatment
Deep frustration and sadness after finding the love of my lifeHi all, my name is Lucienne, i,m a 57 year old woman from The Netherlands. I,m so depressed and sad that i decided to search for a forum where i...Reactions 0 reactions Comments6 replies