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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Severe hot flashes

I was just wondering if there might be a hormonal imbalance with gMG. I was diagnosed at 19, had a thymectomy at age 20, tick every box on the symptoms...

Tips for breathing

Most of my MG symptoms are under control, I do get flares sometimes though. However today I'm having some breathing issues, which happens every so often to me. What do...

Vyvgart for Ocular MG

While viewing the Vyvgart (Argenx..manufacturer) website, I noticed that a clinical trial is being developed specifically for the treatment of ocular myasthenia gravis! My question- has anyone being treated with...

Acupuncture

Has anyone tried acupuncture in conjunction with your MG treatment?...

Congenital myasthenic syndrome

I'm a Brit in my mid-seventies living in Germany and have had CMG for the past 35 years. CMG means that I have a genetic defect, not an auto-immune disease...

Childhood Memories

Hello all. I am 40 years old and have had MG since 1989, when I was 6 years old. I was the youngest case of MG to be diagnosed in...

Could giving blood regularly reduce symptoms?

I have given blood regularly my whole life, but stopped after retirement and fatigue after giving. My double vision started after that, so wondering if giving blood may have helped...

does anyone have fingers that suddenly curl up and hurts when you put them str8?

About 2 weeks ago a finger on my left had would spontaneously curl straightening it out was painful Now it feels something is wrong with the whole hand especially the...

Myasthenia Gravis

I was diagnosed lasted November but I think I’ve had MG for longer so to cut the story short I went to see a neurologist last January she done some...

the connection between MG and tick born illnesses

Looking for information about tick born illnesses causing MG....

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