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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Sudden movement risks

My symptoms appear to be mild most of the time until I make a sudden movement - either stopping, turning, reaching quickly, etc. It is then that I may fall...

Thymectomy

Hi there I was diagnosed with mg in early 2020. Since then I have experienced everything one could expect with mg including a myasthenia crisis. A ct scan revealed a...

Diagnosis and beyond

I am not sure if this is where to share this, or even how much to share, so feel free to remove. I was diagnosed almost 4 years ago, it...

MG related or not?

I am very recently diagnosed (<1 month) at the age of 27, but I’ve been having investigations for very mild but slowly progressive symptoms since I was about 14 years...

The State of Vision Health

Vision health has seen significant advancements over the years, but challenges remain. With increased awareness about eye health, more people are seeking regular eye exams, which has led to early...

Choosing the Right Glasses for Your Eye Health

Selecting the right glasses is crucial for maintaining optimal eye health and ensuring clear vision. The type of lenses you choose can significantly impact your eye comfort and overall visual...

Coping

could anyone tell me what causes the myasthenia pot belly? Sue from Australia where there are no specialist myasthenia doctors....

Do you have flare symptoms that show up well after your exposure to a trigger?

My usual flare symptom is fatigue. But if my trigger exposure is more extreme it includes slight slurring and then my right eyelid droops. As a result, it’s been a...

Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet?

Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet? --- Did this oversight result in a significant crisis or adverse reaction? --- What steps...

The change from hot weather to cold

Cold weather - how does it effect MG?...

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