Does anyone else in your immediate family have MG? After a five-year struggle, I was finally diagnosed in 2018 as Seronagative. My journey through a long list of unexplained symptoms help me spot the same issues in my father...Reactions0reactionsComments1 repliesFriends & FamilyNewly DiagnosedAutoimmune Diseases
Lack of medical supportI live on Cape Cod Mass. and was diagnosed with MG in 2021. I went to a Neurologist and was given the normal cocktail of medications. I was on them...Reactions0reactionsComments5 repliesAutoimmune Diseases
Wasn’t in RemissionI’m submitting this for my spouse, Karen, who was diagnosed with MG three years ago. She had a thymectomy and was later on IVIG infusions and later Cellcept was added...Reactions0reactionsComments2 replies
Diplopia and prisms?I was just seen by the optometrist in the ophthalmologist’s office. When I told him that I was still having double vision he put prisms in front of my eyes...Reactions0reactionsComments10 repliesVisionAssistive Devices
My self healing journeyI was diagnosed as ocular MG in 2006, double vision was the only symptom. I got treatment of prednisone , starting from 60 mg, taping down to low doze after...Reactions0reactionsComments5 repliesAwarenessFriends & FamilyOcular MG
Are You a Diabetic With Myasthenia Gravis?Do you have diabetes as well as Myasthenia gravis? We would love it if you could share your experience and what your treatment regimen looks like....Reactions0reactionsComments4 repliesHealthcare TeamNewly DiagnosedTreatment
CellceptI'm on 50 mg of prednisone plus 240 mg of mestinon daily. The prednisone is awful. Ive gained weight and i have the worse case of moon face ever. Can't...Reactions0reactionsComments4 repliesAutoimmune Diseases
Support Page for Those Age 60 and Older With Myasthenia GravisThis is a support page for those with Myasthenia gravis age 60 and older. Feel free to share and discuss anything you please that follows our guidelines: https://health-union.com/community-rules/...Reactions0reactionsComments2 repliesAwarenessTips & AdviceNewly Diagnosed
Flare UpsDoes any one have any experience with Flare ups how often they occur for how long a day week longer. How severe are they...Reactions0reactionsComments2 replies
Do You Have Seronegative MG and Had Insurance Deny Coverage for Treatments?Do you have seronegative Myasthenia gravis and have had a problem arise where your insurance is denying coverage for specific treatments? Or have they stopped covering a treatment once you...Reactions0reactionsComments0 repliesSeronegativeTreatmentInsurance & Disability