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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Have you noticed any toe changes like curling or stiffness?

Have you noticed any changes in your toes, like curling or stiffness, either before or after your diagnosis of Myasthenia gravis? How have these changes affected your daily activities?...

Mr Tony Arnold

The first time that I realised something was wrong was when I heard a colleague fall off of his heavy goods wagon whilst loading it. I shouted for help but...

Constant Recurrence

I have still a hard time on occasionally right eyelid dropping, itching with astigmatism especially during driving, double vision is quite okay now after taking Prednisone 5 mg in addition...

Doing Great…..except for my feet!

I was diagnosed in 2021 just about a month after my first covid vaccination. My Neurologist is managing the illness very well with mestinon and cellcept. I feel very fortunate...

Diaphoresis, anyone?

Two medications I take - Pyridostigmine and Levothyroxine - are known to have excessive sweating as side effects. This has been getting out of hand - sometimes when it's hot...

Hospital Visit for Cardiologist

Well been in and out of hospital and a&e but this time I had been in hospital for about 5 days and I was waiting to see the cardiology doctor...

Living with someone who has MG

My husband was diagnosed with MG when he was 23 with all classic sighns of choking weakness dropped eyelids he then had thymectomy and put on Pyridostigmine then after 2...

Older vs newer more targeted therapies

What are anyone’s experiences in changing over from older immunesupressants to the newer compliment inhibitors ( Solaris or ultimoris or ziucoplan ) or FcRn (vygart or rystiggo/rozanolixumab). If this was...

Muscle Spasms with and without Pyridostigmine (Mestinon)

Have you taken mestinon and experienced muscle spasms? Did your doctor have you suspend the use of the treatment? Have you noticed muscle spasms even without being on mestinon? Muscle...

Intravenous immunoglobulin treatment (IVIG)

Intravenous immunoglobulin (IVIG) is a treatment option for many people with autoimmune diseases. IVIG can be a treatment for myasthenia gravis (MG). Have you ever gotten IVIG before? If so...

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