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Read conversations, start a discussion, and connect with others about myasthenia gravis.

What are the early symptoms of Myasthenia Gravis, and how can they be managed effectively?

Myasthenia Gravis (MG) often begins with symptoms that may seem mild but can gradually worsen. Early signs include muscle weakness, especially in the eyes, face, and throat, which may cause...

Have you noticed any toe changes like curling or stiffness?

Have you noticed any changes in your toes, like curling or stiffness, either before or after your diagnosis of Myasthenia gravis? How have these changes affected your daily activities?...

Emergency room- advocating for your MG and communicating with staff

Have you had an emergency room visit since having MG? If you were unaware, many drugs can trigger or worsen MG symptoms and potentially lead to a crisis. Suppose you...

Has an MG Treatment Caused You Increased Heart Rate?

Has a Myasthenia gravis treatment you have tried caused you an increased heart rate? If so, which one(s)?...

Will you take our In America survey and help others understand the true impact of MG?

**The In America survey is now closed** To better understand the patient experience and realities of MG, we are fielding our Myasthenia Gravis In America survey. By taking this anonymous...

Headaches or migraines as a primary or persistent/main symptom

Hi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is under researched like a lot of conditions and...

Had You Heard of Myasthenia Gravis Before Your Diagnosis?

When you were diagnosed, or a doctor proposed you could have Myasthenia gravis, had you heard of it before? If yes, from where? I was utterly clueless about what it...

Nightly cramps after fluoroquinolone antibiotics

I was having debilitating pain from cramps in the middle of the night. They continued no matter what I did. Although I was never actually diagnosed with anything, I did...

Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet?

Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet? --- Did this oversight result in a significant crisis or adverse reaction? --- What steps...

Have you or a loved one been involved in a Myasthenia gravis clinical trial or study?

Have you or a loved one been involved in a Myasthenia gravis clinical trial or study? (https://myasthenia-gravis.com/clinical/understanding) Your participation in these trials is incredibly valuable. It furthers our understanding of...

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