Exposed to Agent Orange During the Vietnam War and Developed Myasthenia Gravis, or Your Children?Were you exposed to Agent Orange during the Vietnam War? Do you or your children have Myasthenia Gravis? Many individuals suspect that Agent Orange may have caused their development of...Reactions0reactionsComments0 repliesAwarenessNewly DiagnosedWork & Employment
Vyvgart Side-Effects and Adverse ReactionsWe understand that using Vyvgart (Efgartigimod alfa) can sometimes come with side effects. Could you share any experiences you've had with it? Did it lead to your doctor ordering you...Reactions0reactionsComments0 repliesTreatmentSide EffectsAwareness
MG in the mediaFeeling conflicted having just watched Madame Web on Netflix. Good to have main stream exposure, but I believe like most streams a bit of misinformation. I hope the attempt was...Reactions0reactionsComments3 repliesAwareness
Unsuccessful Prednisone TaperHas your doctor directed you to taper your prednisone, and your body rejected the withdrawal? --- At what point in the taper process did your body start showing signs of...Reactions0reactionsComments2 repliesTreatmentAwarenessNewly Diagnosed
Myasthenia gravis and adverse reaction to the meningococcal vaccine?Do you have Myasthenia gravis and had an adverse reaction to the meningococcal vaccine required before starting the MG treatments Ultomiris, Rystiggo, Zilbrysq, and Soliris? It's crucial to know that...Reactions0reactionsComments0 repliesTreatmentAwarenessRefractory MG
Has a Fever Triggered Your Myasthenia Gravis Symptoms?Has a fever triggered your MG symptoms? How severe?...Reactions0reactionsComments2 repliesTriggersAwarenessMuscle Weakness
Do you have MG and have tried Magnesium L-Threonate or Magnesium Glycinate? Did you have any adverse reactions?While there's a wealth of published studies on Magnesium Sulfate and Myasthenia gravis (https://myasthenia-gravis.com/clinical/magnesium-sulfate), the same can't be said for Magnesium L-Threonate or Magnesium Glycinate and MG. If you're an...Reactions0reactionsComments0 repliesAwarenessNewly DiagnosedTriggers
Pyridostigmine/Mestinon Adverse ReactionsDid you try Pyridostigmine/Mestinon and have adverse reactions causing you to stop taking it? If you are comfortable with sharing, which specific side effects?...Reactions0reactionsComments0 repliesTreatmentSide EffectsAwareness
How Often Do You Receive IVIG infusions?Do you receive IVIG (intravenous immunoglobulin) infusions? If so, how often? https://myasthenia-gravis.com/living/ivig-outcome...Reactions0reactionsComments1 repliesAwarenessTreatmentSeronegative
Do You Know Anyone Besides Yourself Who Has Myasthenia Gravis?Do you know anyone besides yourself (or the person you are here to support) who also has Myasthenia gravis? Do you think MG is more common than statistics say? Possibly...Reactions0reactionsComments1 repliesFriends & FamilyAwarenessNewly Diagnosed