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Read conversations, start a discussion, and connect with others about myasthenia gravis.

What causes Myasthenia gravis

When I was in the military I was in contact with JP-5 fuel frequently for 4 years. It is said by the department of health that it affects the nervous...

Weakness in my neck and back!

My neck and back muscles were allowing my head to hang forward. Spent five days in hospital. They pumped steroids into me each day. Came out with my head up...

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Vyvgart

Did anyone get the new Vyvart infusion yet? My dr wants me try to try it but had flair after 13 yrs with no symptoms until Feb of this year...

Prevnar 20

Anyone get the prevnar 20 vaccine? Any problems?? Im scheduled for one at 1:00 pm today abd nervous. Help...

Cure or Relief

Recently (to me) CBS News released a segment on Tzield; a new medication recently approved by the FDA for some level of relief of Type 1 Diabetes. It was clear...

possibly diagnosed with MuSK MG and confused/scared

I am a 34 year old woman in New York and for the last 7 months, been having strange symptoms on and off. It started with my arms/legs tingling and...

infusions

I have had 3 infusions of oxidam. How long until see improvements?...

Diagnosis - New Symptoms?

Hello, I am so thankful for this forum. Your replies have been a tremendous help. I went to my neurology appointment today, and he immediately referred me to a bigger...

medication side effects

Hi. I recently started mestinon. I was having generalized weakness, shortness of breath, double vision/very blurry vision and ptosis. I was at a point that brushing my teeth is difficult...

Therapies to relieve symptoms

Hey everyone, I'm looking for some therapies that might help relieve some of my symptoms. For a bit of background... I'm 26 and recently diagnosed with Myasthenia Gravis, whilst my...

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