Struggling with myasthenia gravis Hello friends, It is a pleasure to meet you all. I have been diagnosed with MG since 2014. I have been struggling with it in refugee camp without proper medication...Reactions0reactionsComments13 repliesCoping
new medicationLooking for info on MH patients that are using Ultomaris...I understand this is a new medication for MG and looks very promising....thoughts? side effects? Mu husband has occular MG which...Reactions0reactionsComments7 repliesTreatment
MuSK MG... ... anyone out there with MuSK MG? Hello, I have just been diagnosed with MuSk MG and am awaiting my first appointment with a nuero muscular specialist nuerologist. Wondering...Reactions0reactionsComments4 replies
Thymus glandDo i have to be removed even if it isn't bloated? I have a breathing disorder, and the doctor tells me that it can only improve by 30 % if...Reactions0reactionsComments4 repliesTreatmentThymectomy
Plasma aphersis Wondering if anyone knows. If getting 10treaments of plasma aphersis (didn’t work) am I losing any of protection from the Covid shots had 3. Drs didn’t answer me either!!! Dr...Reactions0reactionsComments2 repliesAutoimmune Diseases
How do I manage this mysthania ?gravisHi Am ifeoma I started experiencing weakness in 2010 because I was pregnant I thought it was one of the symptoms of pregnancy. After birth it continues that I have...Reactions0reactionsComments1 repliesAwareness
I was born in 1956 . There was something wrong with my muscles...my brother had it too...We were tested for MS and other neurological diseases. We had very heavy eyelids and our eyes did not move. We were diagnosed with MG at the Univercity of Chicago...Reactions0reactionsComments3 repliesCoping
Diagnosis Eludes Us- So FrustratedAt 19 I noticed my daughter holding her chin up all of the time and she stopped singing around the house. She had trouble swallowing and chewing. Since then she...Reactions0reactionsComments4 repliesAutoimmune DiseasesDiagnosisGeneralized MG
Might it be MG?Right, for the last 18 months I have experienced double vision (vertical) accompanied by a tightness over my head from temple to temple whenever I bend down and do something...Reactions0reactionsComments4 repliesDiagnosis
Covid and PaxlovidHi just wondering if anyone has taken Paxlovid for Covid? Paxlovid is an anti viral treatment which has FDA emergency use authorization. I was given this after testing positive for...Reactions0reactionsComments3 repliesSide EffectsAwarenessHealthcare Team