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Read conversations, start a discussion, and connect with others about myasthenia gravis.

How do you cope with flare-ups during the holidays?

I know many of us love the holiday season, but with much running around some of us can have a difficult time keeping our symptoms at bay. What symptoms do...

Cooking with MG

Like so many others, I have had difficulty eating and even more difficulty in cooking my own meals. As such, I have become dependent on family members for food and...

Fresnel Prisms - suppliers? (United Kingdom)

In the last week I've had a recurrence of diplopia after over four years of no symptoms. I went to my local eye hospital, where on Friday I was assessed...

What are your Goals and/or Challenges

Join me in an empowering discussion as we discuss our goals and the challenges we face on our journeys. Sharing our aspirations and obstacles can help us to connect as...

Sleep or the lack of sleep

I’d been having a serious problem sleeping. The Dr’s wouldn’t give me anything for it because I’m over the age of 65 and they said it may cause me to...

Happy Hypoxia/silent Hypoxia or similar

Just wondered whether anyone has experienced regular low oxygen levels 94% and under without feeling particularly or overly distressed or breathless as can be seen in COPD or similar respiratory...

Your Azathioprine (Imuran) Side Effect Experience

Azathioprine, also known as Imuran, can cause several side effects, commonly including nausea and vomiting. Long-term usage can cause cancer and infection risk increases. Has your Myasthenia gravis ever been...

Ocular MG

I was diagnosed by a neuro opthamologist but my blood tests were negative. Even though I have ptosis, the consulting neurologist said that he did not believe I have this...

Diet

Is there one basic recommended diet for patients with gMG? Especially for fatigue and brain fog? Thank you...

Has anyone tried compression sleeves post activities?

My husband has had myasthenia gravis for nearly 3 years now. He is an amazing man and has handled himself with such dignity throughout this journey. He did have a...

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