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Read conversations, start a discussion, and connect with others about myasthenia gravis.

I never heard of myasthenia gravis until the neuroglist said I have it.

I noticed that I would occasionally have double vision and that my left eye was not behaving. Having had retina problems, I prefer to be checked out by an opthalmologist...

Which antibiotics are safe to have if you have ocular myasthenia gravis

Please helpm me, What antibiotics are safe to have if you have ocular myasthenia gravis...

Ocular mg

I was just diagnosed with ocular mg.im talking pyridositigmine.does anyone get dizzy from it?...

HUSK MG

I accompanied my friend to a neurologist. Because of slurred speech and weak facial muscles he tested her for the Musk type of MG. The test was negative for MUSK...

General questions

I was diagnosed years ago, as the years have past I could do less & less without losing my breathe. I'm on IVIG twice a week every other week. My...

Has anyone had a transternal thymectomy?

I had a transternal thymectomy about 14 weeks ago. Whenever I lay down then get up, seems like my chest sticks to whatever is on the inside of it where...

Leg weakness

I have MG, but my main symptoms are leg weakness and fatigue. Double vision is much better after Thymectomy in 2017. I would love to hear from people that have...

Has anyone here had a dual diagnosis of Myasthenia Gravis and Arnold Chiari?

I know this kind of diagnosis is quite rare, or it was when I was diagnosed in 1988. The symptoms are similar, but exaggerated. I was told “this is usually...

Did You Massage Your Thymectomy Scar?

Many hospitals and health institutions recommend scar massaging a few weeks post-operation. Different massaging methods may be suggested, but they all have the same purpose. The aim of scar massaging...

How long does nerve pain last on chest after thymectomy?

I just want to know how long will I have the nerve/muscle pain since surgery? I can’t stand anything touching the incision. Any help?...

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