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Read conversations, start a discussion, and connect with others about myasthenia gravis.

MG and Homeopathy

Hi, I'm very freshly diagnosed and trying to educate myself on the illness. Very grateful for this group and for technology, I live in Greece.. I have a question. Has...

What would you tell yourself when you were first diagnosed?

Its easy to notice where we are in the present and where we'd like to be in the future, but what would you tell yourself back when you were told...

Any side effects of long term IVIG treatment?

I am now 53 years old. I got diagnosed with Thymoma in Dec 2020. Had surgery in February 2021. After surgery, in April 2021 I started slurry speech and difficulty...

My PCP says...

Although the neuro has yet to diagnose me, he put me on Mestinon and it seems to help (although only 2x per day, AM and bed) but my PCP says...

New to Myasthenia

7 months ago I went to work and had pressure on the left side of my head and in my ear. As I was triaging a patient I felt my...

No diplopia, will meds improve eye movement when reading?

Do you guys think that this is worth treating? I'm very suspicious that I have ocular mg. I am positive for multiple physical signs including the ice test, cogan's lid...

blepharoptosis surgery for Ptosis

Hi, i am diagnosed with ocular myasthenia gravis and was given mestinon to help with my droppy eyelid. Aside from the medications, i am just wondering if anyone go for...

Mid-diagnosis journey and have a few questions

Hi there, having been referred to neurology earlier in the year with a drooping right eyelid, I am now in the midst of tests and scans; blood tests came back...

Speech

Hello, I care for my mother, who has been diagnosed w/ Myasthenia Gravis, and she has issues w/ trying to think of words that she is trying to say. Can...

Heat/Sweat

Dear friends, Before I ever even had one symptom of MG that I knew of I started having a problem. I would be at work and if I got the...

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