COVID and gMGI started getting double vision about one month after I took my fifth COVID vaccination, has anyone else tied their initial symptoms to the COVID shots?...reactions1replyTriggers
Do You Have MuSK or LRP4 Antibodies?Do you have MuSK or LRP4 antibodies? "Most people with MG have problems with acetylcholine receptors (AChR). However, other antibodies may cause MG, such as muscle-specific kinase (MuSK) and low-density...reactions5repliesTypesAwarenessDiagnosis
Is anyone else on azathioprine?I have been taking azathioprine now for several months, but it does not seem to be helping much for muscle weakness and fatigue. My neurology PA said it can take...reactions4repliesMuscle WeaknessSymptomsTreatment
How does the heat affect you?Yesterday I took a walk, the distance I've been able to work up to since starting Mestinon a few weeks ago. Nowhere near how far I could walk a year...reactions4repliesExerciseNewly DiagnosedWeather
Mestinon stop working I’ve had myasthenia since 1987. Last few years Mestinon doesn’t help as much. Anyone else ???...reactions1reply
Still not diagnosed but Dr started me on mestinon.....I have not officially been diagnosed. Waiting on labs. But because of symptoms, the Doctor started me on Mestinon. It seemed to help at first but now it is only...reactions8replies
NEW APPROVED MG TREATMENT for Gmg - Vyvgart HytruloSuper exciting!! The FDA has just approved Argenx’s subcutaneous injection (given in the fatty tissue just under the skin) formulation of efgartigimod, called Vyvgart Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) to...reactions3repliesTreatmentGeneralized MGSymptoms
MG and anger i do not have MG but my mother was diagnosed with general myasthenia 22 years ago when i was 13. i have joined the forum to seek a few answers...reactions5repliesFriends & FamilyIntimacy & RelationshipsMental Health
What is the “I choke on everything diet?”I read about a member being on this diet. My jaw gets tired easily when eating and it isn’t just when I chew steak. I’m interested in eating foods on...reactions5repliesCoping
What painkillers can I takeI suffer with two bad knees. One I had replaced quite some years ago and the other needs replacing but I am reluctant due to the risk of infection. I...reactions2repliesCoping