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Read conversations, start a discussion, and connect with others about myasthenia gravis.

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What symptoms have been the most surprising?

Thinking about your myasthenia gravis symptoms and journey, what symptoms have been the most surprising, or unexpected?...

Thymectomy

Would you all please describe what it was like before and after having a thymectomy including what your recovery was like? I am most likely going to have one but...

Im frustrated with testing

I started with pretty extreme weakness in my legs and pain in my back and hips. My primary ruled out orthopedic causes and referred me to a neurologist. I am...

Newly diagnosed

Started treatment this week for mg 4 x half pyridostigmine but only slight change...is this normal? Also im in the UK and would love to connect with others as I...

Myasthenia what?

I have been dealing with chronic Lyme disease for several years and have had different types of pain so I thought the weakness in the left side of my mouth...

I've bee n prescribed CellCept

Anyone out there using cellcept now who can give me some information, etc??? Reading about all the possible side effects is lots of fun, if you know what I mean!...

Sfemg

Hello! I recently had a sfemg. In the frontalis I had 3 abnormally high jitters out of 20 pairs, but one of them was "uncertain". Then they tested orbicularis oculi...

MG and going to the dentist

I have MG and I am scared to get my mouth numbed up at the dentist. Does a person with MG do ok with this?...

Frustration

So after being told that I was in remission and being encouraged to cease my mycophenolate which I was not comfortable with I now find out through new blood tests...

Diet and suppliments

Are there any guidelines for diet and suppliments with MG?...

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