UPDATE: Thymectomy surgeryI had my thymectomy surgery Dec 3rd and was released from the hospital the next day. It was a success. Oddly enough I am a lot more mobile than I...Reactions0reactionsComments21 repliesThymectomySurgeryTreatment
Suspect MyastheniaI had a ct scan on my lungs because of a persistent cough. The scan showed atelectasis in both lungs. The pulmonary doctor said it was caused by muscle weakness...Reactions0reactionsComments3 repliesDiagnosis
Antibody Blood Test TimingAre blood test results affected by the timing of an antibody blood test draw with the immediate level of Myasthenia symptoms?...Reactions0reactionsComments2 replies
IVIG infusion I was told by my dr. I can’t have that infusion because I had 2 cancers back in 2008 and the side effect of that infusion is cancer ! I...Reactions0reactionsComments2 replies
what is the best way to deal this?newly diagnosed,what can I expect in the future?...Reactions0reactionsComments2 repliesCopingDiet & NutritionIntimacy & Relationships
A tuning point of healing MGMy healing journey reached a turning point when I first got in touch with self-healing Qigong meditation. I was in my friend’s car. His wife showed me the Chinese book...Reactions0reactionsComments8 repliesAutoimmune DiseasesAwareness
Myasthenia flare up Hi all, I was diagnosed at 21 years old, with mg and thymoma over 2 years ago. I was treated with steroids, IV and chemotherapy for thymoma tumour and have...Reactions0reactionsComments2 repliesAwarenessCrisis
Newly diagnosed Hi all , after having covid in October 2021 I started getting double vision, I had blood tests & was told I have mg , I have been on medication...Reactions0reactionsComments2 replies
Very ScaredI just was diagnosed the first of this year they out me on steroids till I could see nuro see is saying its just me eyes I can barely walk...Reactions0reactionsComments2 replies
New diagnosis of MGI just had my first visit with a neurologist after I tested positive for MG back in November. It seems my double vision got worse a couple of years back...Reactions0reactionsComments3 replies