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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Myasthenia Gravis

Hello. I have MG.After 18 months I'm actually seeing a MG specialist. Neurologist are great,but to have a specialist who opened a MG clinic in a hospital has been great...

Hereditary MG

My mother in law told me her mother had MG and she died in late 50s due to complications from the disease. My mother in law was told that the...

Mg and asthma

I have been treated since2001 for Mg. Briefly prior to that they said I had asthma. Mg was diagnosed and asthma treatment discontinued. I had chest infection over Xmas and...

Steroids, Rituximab and summer

I have diagnosed with gMG (seropositive)since Feb 2022. I was on steroids since then. I stared to have issues with my vision. Checked up and diagnosed as a steroids responder...

Highest Steroid Dose You’ve Been Prescribed

What is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in a crisis or significant flare? Have you been...

Not reacting to treatments

Hi there im a caretaker and my spouse has MG 3 weeks ago he was not feeling good since the new IV treatment was not lasting him ( vyvgard) And...

Neck Pain

Do you have Myasthenia gravis and experience neck pain? https://myasthenia-gravis.com/clinical/pain What does the sensation feel like, and when do you notice it? Have you found any remedies to help? As...

Did Your MG First Symptoms Happen All at Once, a Crisis?

A Myasthenic Crisis is the most severe event Myasthenia gravis can cause. Although it can vary, a crisis typically involves weakening multiple muscles, double vision, unsteady balance, and swallowing difficulties...

Do You Have a Preference of Older or Younger Doctors to Treat MG?

Do you prefer a young or older healthcare professional to treat your MG? Age by no means determines how much knowledge or skill a doctor offers. And an individual could...

Potassium

My readings tell me that low potassium can affect one’s muscles. Once upon a time I went in for a kidney stone removal. Before they would blast my kidney it...

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