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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Mysthenia with IVIGG

Has anyone receiving ivigg treatments noticed that several weeks later, severe shortness of breath? I have had GMG since 2014. Had malignant thymus gland removed in 2016. Take mestinon and...

Positive Test Results Only Once

I started having MG symptoms in 2021. However, all my test results were negative for an entire year. Then, in 2022, I tested strongly positive for MuSK. Now, in 2023...

Heart Issues

I am wondering if anyone else with MG has experienced any heart related issues. Recently my doctor found an abnormality in my EKG relating to electrical conductivity. This wasn't there...

Eculizimab treatment in seronegative Mg

Hello there! I am writing this article via translation. So there may be mistakes in my explanation, sorry.. I live in Istanbul, Turkey. I am 42 years old female and...

I never heard of myasthenia gravis until the neuroglist said I have it.

I noticed that I would occasionally have double vision and that my left eye was not behaving. Having had retina problems, I prefer to be checked out by an opthalmologist...

Which antibiotics are safe to have if you have ocular myasthenia gravis

Please helpm me, What antibiotics are safe to have if you have ocular myasthenia gravis...

Ocular mg

I was just diagnosed with ocular mg.im talking pyridositigmine.does anyone get dizzy from it?...

HUSK MG

I accompanied my friend to a neurologist. Because of slurred speech and weak facial muscles he tested her for the Musk type of MG. The test was negative for MUSK...

General questions

I was diagnosed years ago, as the years have past I could do less & less without losing my breathe. I'm on IVIG twice a week every other week. My...

Has anyone had a transternal thymectomy?

I had a transternal thymectomy about 14 weeks ago. Whenever I lay down then get up, seems like my chest sticks to whatever is on the inside of it where...

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