Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Seronegative myasthenia

Does anyone have any input on thymectomy for seronegative MG Thanks...

Positive MUSK antibodies, followed by 2 negative tests, then enlarged thymus.

I have had strange weakness symptoms on and off for about 10 months. My doctors checked for M.S and a few other things , all of which came back negative...

Newly diagnosed.

One day in mid August my daughter stopped by where I was working and noticed my eye was drooping. I made an appointment with my eye doctor for the following...

Newly diagnosed with MG

Hello, I’ve only just been diagnosed with MG after months of drooping eyelid and severe double vision. I’m 35 years old and a lot of the symptoms seem to tie...

Thymectomy recovery advice

Hello everyone, I'll be getting a Thymectomy in 2 weeks and I'm in need of some recovery advice or experiences. My kids will be spending 2 weeks with family because...

Driving?

Driving is safe after thymectomy surgery or how it feels when drive ? Anyone experienced of this ?? Need to know ? Thanks 😊...

Still Improving

I have come a long way since my MG diagnosis in July 2020. I saw my specialist today. My eyelids were even and the twitching is reduced, double vision is...

Featured

For the newly diagnosed

Being diagnosed with any condition can be challenging. Being diagnosed with a chronic autoimmune disease might feel impossible at first, but the good news is that it’s not impossible and...

Communications on the Job

With such a rare condition, do you ask for accommodations or do you simply endure? What accommodations can help you continue to be productive?...

Connection between MG and the sPLA2-11a Enzyme?

See the link below which speaks to the impact of this enzyme which "has the capacity to bind to receptors at neuromuscular junctions and potentially disable the function of these...

Categories

Select a category to find topics that interest you.