Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

How do you feel about using technology to help manage health? Take our survey here.

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Ivig treatment at home

I have been approved by Medicare for IVIG treatments at home but was informed by Optim Infusion there is a $4239.50 out of pocket expence. Anyone know anything about this....

Soliris (Eculizumab) Outcome & Side Effects

Eculizumab (Soliris®), https://myasthenia-gravis.com/biologics, is a Myasthenia gravis treatment approved for generalized myasthenia gravis (gMG)(https://myasthenia-gravis.com/generalized) & anti-acetylcholine receptor (AChR) antibody-positive (https://myasthenia-gravis.com/causes). Have you been treated...

Blood tests are negative but have symptoms

I have many of the symptoms of MG- loss of muscle strength around my mouth, sometimes trouble chewing/swallowing /drinking water some slurring of words but the blood tests are negative...

Share some medications that have been proved to be useful for CMS patients.

Hii everyone! I have a neurological disorder called congenital myasthenic syndrome (CMS). Despite trying various medications, none of them have been effective. My neurologist has suggested ephedrine treatment, which has...

Refractory Mg-Does Your MG Not Cooperate With Treatment?

Do you have refractory MG? If you are unsure of this term, refractory MG refers to anyone with MG in which: "MG symptoms that do not improve with typical drugs...

Tinnitus

I have tinnitus which coincidentally started about the same time my other neurological issues did. Have others had this same problem and if so, has your neurologist said it was...

Side effects vs. Symptoms

I'm 74, diagnosed in 2019 did steroids, MESTINON, and CELLCEPT and I find that the side effects of the medications are as bad as the symptoms. I'm presently on ULTOMIRIS...

What Main Quality Do You Look For in a Doctor

When aiming to find a doctor that feels like a good fit, we must remember that health professionals are human and not perfect. Some have so much on their plate...

National Awareness Month

Being new to M-G.com (and the Health Union Community) does Myasthenia-Gravis.com do anything each year to give light to one, or more, aspects of Myasthenia-Gravis; either awareness, or healing, or...

Working Full-Time

I was diagnosed in November so I am virtually new. I'm on 5mg of prednisolone and pyridostigmine 90mg 4 times a day I get days when I think I've got...

Categories

Select a category to find topics that interest you.