Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Tell us about your symptom and treatment experience. Take our survey here.

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Does Anything Specific Provoke Breathing Difficulty for You?

Do you experience problems with your breathing? Does anything specific trigger it? How often does it occur on average?...

Side effects from medications that your doctor wont acknowledge

Have you ever started a new medication and began having symptoms that your doctor refuses to acknowledge? How did you overcome this? How did it make you feel?...

Managing weakness when waking up

Hi everyone, I am new to this forum/website and I was only formally diagnosed with MG in November 2023. I am 25 and based in the UK. I have comorbid...

Is Your Job MG Friendly?

Is your job/career myasthenia gravis friendly? You can interpret the question as you wish....

Characteristics and Events Comprising Your Highs and Lows Exercising with MG

What do your highs and lows look like or what is characteristic of these moments when attempting any exercise or physical activity with Myasthenia gravis? What makes for a moment...

Happy Hypoxia/silent Hypoxia or similar

Just wondered whether anyone has experienced regular low oxygen levels 94% and under without feeling particularly or overly distressed or breathless as can be seen in COPD or similar respiratory...

Awaiting possible diagnosis

Hi, am new to these boards. I’m 52 and living in the UK. I mentioned an intermittently droopy right eyelid to my optometrist about 4 months ago who referred me...

One word to describe the past month

Describe how you have felt this past month with one word....

Severity of symptoms

My husband was experiencing muscle weakness in his legs for several years - needing to frequently "rest" between activities. We talked to several doctors with no real suggestions. Last year...

problem with difficulty urinating

good evening, I have been diagnosed with myasthenia gravis since 2009, for the last year I have difficulty urinating and I have a small flow, I am 32 years old...

Categories

Select a category to find topics that interest you.