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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Managing expectations

Hey folks - I'm pretty new to this, having been diagnosed with antibody positive MG in January. Currently, I am only experiencing ptosis and very occasional diplopia, both of which...

Unusual presentation of symptoms

Hello I wanted to share my unique story in hopes of making sense of a mystery. My doctor after about a month of trying to rule other things out is...

Diagnosis - New Symptoms?

Hello, I am so thankful for this forum. Your replies have been a tremendous help. I went to my neurology appointment today, and he immediately referred me to a bigger...

MYOCLONUS

Nightly and now at times during afternoon nap. When extremely short of breath, my ribs feel as if squeezing and aching pain in the past. Now only mild activity brings...

My PCP says...

Although the neuro has yet to diagnose me, he put me on Mestinon and it seems to help (although only 2x per day, AM and bed) but my PCP says...

No diplopia, will meds improve eye movement when reading?

Do you guys think that this is worth treating? I'm very suspicious that I have ocular mg. I am positive for multiple physical signs including the ice test, cogan's lid...

Featured

What symptoms have been the most surprising?

Thinking about your myasthenia gravis symptoms and journey, what symptoms have been the most surprising, or unexpected?...

Sleep Disturbance

Not sure if many with MG have this or not but was wondering if sleep disturbances are common with MG. I am having a terrible time falling and then staying...

it started out of the blue

Has anyone else just suddenly experienced a sensation that one of their hands had been disconnected or somehow unplugged? While the other hand started trembling? I was in an Ulta...

Newly diagnosed.

One day in mid August my daughter stopped by where I was working and noticed my eye was drooping. I made an appointment with my eye doctor for the following...

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