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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Exhaustion?

Hi, I'm not (yet?) diagnosed with MG, but I have a strong suspicion, and my doctor does too and is currently doing tests to check on it. Usually, my symptoms...

Highest Steroid Dose You’ve Been Prescribed

What is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in a crisis or significant flare? Have you been...

Neck Pain

Do you have Myasthenia gravis and experience neck pain? https://myasthenia-gravis.com/clinical/pain What does the sensation feel like, and when do you notice it? Have you found any remedies to help? As...

Tinnitus

I have tinnitus which coincidentally started about the same time my other neurological issues did. Have others had this same problem and if so, has your neurologist said it was...

Weekly episodes of sounding and looking drunk. GP suggests menopause, but could it something more?

I am writing this post on behalf of my mum and it's going to be a lengthy one. She is 52, no pre-existing health conditions established, although she did have...

Managing expectations

Hey folks - I'm pretty new to this, having been diagnosed with antibody positive MG in January. Currently, I am only experiencing ptosis and very occasional diplopia, both of which...

Unusual presentation of symptoms

Hello I wanted to share my unique story in hopes of making sense of a mystery. My doctor after about a month of trying to rule other things out is...

Diagnosis - New Symptoms?

Hello, I am so thankful for this forum. Your replies have been a tremendous help. I went to my neurology appointment today, and he immediately referred me to a bigger...

MYOCLONUS

Nightly and now at times during afternoon nap. When extremely short of breath, my ribs feel as if squeezing and aching pain in the past. Now only mild activity brings...

My PCP says...

Although the neuro has yet to diagnose me, he put me on Mestinon and it seems to help (although only 2x per day, AM and bed) but my PCP says...

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