My experience with University of Chicago neuromuscular clinic-seronegative frienslyI feel like I need a disclaimer or something similar:This is just reflecting on my journey for a diagnosis. UCM has made a HUGE impact on my life and I...Reactions 0 reactions Comments2 repliesDiagnosis
Diagnosis - New Symptoms?Hello, I am so thankful for this forum. Your replies have been a tremendous help. I went to my neurology appointment today, and he immediately referred me to a bigger...Reactions 0 reactions Comments5 repliesSymptomsDiagnosis
First SymptomsWhat were the first MG symptoms you experienced? How long did they persist before you were diagnosed? How long until you felt you possibly had something serious? - Jodi, Team...Reactions 0 reactions Comments5 repliesDiagnosisSymptomsAwareness
Suspect MyastheniaI had a ct scan on my lungs because of a persistent cough. The scan showed atelectasis in both lungs. The pulmonary doctor said it was caused by muscle weakness...Reactions 0 reactions Comments3 repliesDiagnosis
Could I have MG?Two weeks after receiving the COVID 19 booster dose, I began to feel dizzy and light-headed while walking. All of my blood work came back normal. I went to the...Reactions 0 reactions Comments6 repliesDiagnosisAutoimmune Diseases
PyridostigmineI was just diagnosed about a 5 weeks ago, doc put me on 60mm of Pyridostigmine 3x a day. I feel no change, Doc said first, it could take up...Reactions 0 reactions Comments7 repliesGeneralized MGDiagnosis
Diagnosis Eludes Us- So FrustratedAt 19 I noticed my daughter holding her chin up all of the time and she stopped singing around the house. She had trouble swallowing and chewing. Since then she...Reactions 0 reactions Comments4 repliesAutoimmune DiseasesDiagnosisGeneralized MG
Might it be MG?Right, for the last 18 months I have experienced double vision (vertical) accompanied by a tightness over my head from temple to temple whenever I bend down and do something...Reactions 0 reactions Comments4 repliesDiagnosis
Does Prednisone help with fatigue?Hello, Was diagnosed with MG last month. I am trying to be ultra conservative with my approach. So far I have been taking Mestinon 3x per day as a muscle...Reactions 0 reactions Comments4 repliesThymectomyGeneralized MGDiagnosis
Reference ranges make no senseI had a myasthenia gravis work up from LabCorp and the reference ranges do not match the reference ranges that I was able to find on Mayo clinic's website here's...Reactions 0 reactions Comments1 repliesDiagnosisSeronegativeTips & Advice