MG with a colostomyI am wondering if anyone has an ostomy of any kind? I am having a permanent Colostomy with rectum removed in 5 days. It will be a 4–6-hour surgery. And...Reactions0reactionsComments2 repliesCoping
I Figured Out How to Store My Extra MestinonAs many of us with myasthenia gravis (MG) know, Mestinon (pyridostigmine) is very sensitive to temperature and humidity. My prescription currently reads 120 milligrams every 3 hours while awake. Now...Reactions0reactionsComments4 comments
I Can be Rebuilt: Cataract SurgeryAs a kid I remember watching TV shows about people being rebuilt bionically. Now here I am, cataract surgery in both eyes, getting shots in my lumbar and cervical spine...Reactions0reactionsComments0 comments
Life Will Never Be the SameThere is no joy left in life for me with myasthenia gravis (MG). I know most people would read that sentence and think, hmm ... depression? No, it's not depression...Reactions0reactionsComments12 comments
My Experience with a Modified Barium SwallowI’ve had chewing and swallowing issues on and off for years. I was prescribed a modified barium swallow study (MBSS) so the doctors could figure out why I was choking...Reactions0reactionsComments6 comments
MG Symptoms: I Shouldn't Need to Explain MyselfI have found that when it comes to describing myasthenia gravis (MG), there is no one good explanation for every person. Just like everyone with MG experiences symptoms differently, everyone...Reactions0reactionsComments3 comments
I Just Want To Sleep: Insomnia and MGOne of the first symptoms of my myasthenia gravis (MG) was insomnia. The first night it happened, I was not too concerned because anyone can have an occasional night of...Reactions0reactionsComments12 comments
Not All MG Support Groups Are HelpfulI want to say how thankful I am for Myasthenia-Gravis.com and the way this community is run. I will admit that at times I have some controversial viewpoints. Sometimes I...Reactions0reactionsComments1 comments
Learning to Cope with PtosisI deal with ptosis (droopy eyelids) on a daily basis. Some days are not so bad - it just occurs every few hours when it's time to take another dose...Reactions0reactionsComments1 comments
Is There Hope with Myasthenia Gravis?For the years leading up to this myasthenia gravis (MG) flare, I worked 40 to 60 hours or more a week. I was going full steam every day. I'm not...Reactions0reactionsComments1 comments
My MG WishlistIf you have myasthenia gravis (MG), you know how much stuff you miss out on in life. Although I have heard of a few people who have gone on to...Reactions0reactionsComments1 comments
Every Season with Myasthenia GravisWhere I live there are 4 very distinct seasons! I truly do like all 4 seasons. Each has their own uniqueness about them. But for me, each one also creates...Reactions0reactionsComments4 comments
The Fun Thing About Life: How I Find Humor in MGThere is nothing fun about having myasthenia gravis (MG). It has a lot of ups and downs and twists and turns. You never know from one second to the next what...Reactions0reactionsComments12 comments
Is It the Heat or the Humidity?Don't get me wrong, I know the heat bothers me with myasthenia gravis (MG). But my husband and I have been paying very close attention to the humidity and pressure...Reactions0reactionsComments0 comments
A Trip to the Emergency Room with Breathing DifficultySeveral months ago I called my dedicated nurse, Diane, who was assigned to me by my insurance company to help with my myasthenia gravis (MG). I don't know about you...Reactions0reactionsComments1 comments
Unpredictable Fatigue with Myasthenia GravisOne of the hardest parts of dealing with myasthenia gravis (MG) is fatigue. Especially never knowing when it's going to hit or not knowing how long that fatigue is going...Reactions0reactionsComments22 comments
The Hardest Thing for Me with Myasthenia GravisLet me be clear: There are so many hard things about myasthenia gravis (MG). There is the fatigue, chewing and swallowing issues, breathing difficulty, and vision problems, just to name...Reactions0reactionsComments7 comments
Flying with Incontinence: Going Through Airport SecurityI've flown a few times, and maybe a dozen times before having problems with myasthenia gravis (MG) and incontinence. As we all know, the security check at airports is not...Reactions0reactionsComments2 comments
Getting Back to a Semi-Normal Life with Myasthenia GravisIt has been a long road these last 3 years with myasthenia gravis. In just the blink of an eye, I have gone from doing whatever I wanted, when I...Reactions0reactionsComments0 comments
Not Ready for SummerNow don't get me wrong, I love summer. Well ... I used to love summer! But the longer I live with myasthenia gravis (MG), the more heat bothers me. Whether...Reactions0reactionsComments11 comments
