MG diagnosed 2 weeks ago, thymoma yesterday, and now I’m starting to panic.

The thymoma has a high probability of requiring open surgery. I am a 37-year-old woman. A large cystic tumor was shown on my CT scan yesterday, measuring 6 × 8 × 3 cm(!), and now I am starting to panic. Today I have an emergency appointment with a neurologist and next week with a surgeon. I am so not ready for a rare illness like MG, cancer, and open chest surgery!

I am trying to lift my mood by reading through the forum in the hope of finding experiences similar to mine. But there was not any...

My symptoms over the past 3 weeks include severe general weakness, getting tired very quickly while chewing (I have to rest after about 10 bites), fatigue in my hands and legs, light drooping of my right eyelid, and difficulty swallowing. Because the thymus is very enlarged, I feel like the pyridostigmine tablets get “stuck” on the way to my stomach. The weakness in my right eye muscles has been present for about 1.5 years.

My tumor-related symptoms include headaches, diarrhea, visible veins, and night sweats.

I know I will get through this, but everything is still very new and frightening to me.