My child has eye issues from Myasthenia Gravis, drooping eyelids and vision problems. Has anyone else’s child faced this too?Yes, my child went through something similar;Droopy eyelids and occasional double vision were tough. What helped us was a combination of rest, regular check-ups, and using special anti-glare lenses to...reactionsrepliesAwareness
Personal Experiences with Mental Health Medications: Navigating the Journey to WellnessFor many individuals managing mental health conditions, medication can be a vital component of their treatment plan. However, the decision to start taking psychiatric medications is often accompanied by questions...reactions1replyAwarenessDepressionMental Health
Has anyone here experienced Myasthenia Gravis or is currently managing it? What symptoms did you notice first, and what treatment or lifestyle changes helped you the most?Myasthenia Gravis is a rare autoimmune neuromuscular disorder that causes muscle weakness, often starting with drooping eyelids, double vision, or difficulty in speaking, chewing, or swallowing. The symptoms usually worsen...reactionsrepliesAwareness
Vyvgart Side-Effects and Adverse ReactionsWe understand that using Vyvgart (Efgartigimod alfa) can sometimes come with side effects. Could you share any experiences you've had with it? Did it lead to your doctor ordering you...reactions1replyTreatmentSide EffectsAwareness
What is Leg systomsI was diagnosed with my Myasinthla Gravis about a month ago. My symptoms were trouble, swallowing problems breathing slurred talk. droopy eyelid and crooked smile. My daughter thought I was...reactions1replyAwareness
Newly DiagnosesI have had pain in legs and feet prior to being newly diagnosed with MG. I have been seeing a neurologist for 15 years after my familyn physician thought I...reactionsrepliesAwarenessNewly Diagnosed
Unexplained Symptoms that are Not Characteristic MG Symptoms?What unexplained symptoms do you have that are not characteristic MG symptoms?...reactions4repliesSymptomsNewly DiagnosedAwareness
Have you heard about these latest FDA-approved MG treatments?Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...reactions4repliesNewly DiagnosedTreatmentAwareness
I’ve been recently been diagnosed with MG and I am overwhelmed. I never think I would taking the medicine prescribed. I feel I am having Chemotherapy and the side effects scare me....reactions5repliesAwareness
MG Conference Is anyone going to the MG Conference at the end of March? Has anyone ever attended one before?...reactions5repliesAwareness