First SymptomsWhat were the first MG symptoms you experienced? How long did they persist before you were diagnosed? How long until you felt you possibly had something serious? - Jodi, Team...Reactions0reactionsComments11 repliesSymptomsDiagnosisAwareness
Have you heard about these latest FDA-approved MG treatments?Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...Reactions0reactionsComments0 repliesNewly DiagnosedTreatmentAwareness
Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet? Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet? --- Did this oversight result in a significant crisis or adverse reaction? --- What steps...Reactions0reactionsComments0 repliesAwarenessCrisisNewly Diagnosed
MG Awareness Month Forum!What do you wish more people understood about Myasthenia Gravis? Whether it's about symptoms, treatment, daily challenges, or common misconceptions, share your thoughts below....Reactions0reactionsComments75 repliesAwareness
Have you or a loved one been involved in a Myasthenia gravis clinical trial or study?Have you or a loved one been involved in a Myasthenia gravis clinical trial or study? (https://myasthenia-gravis.com/clinical/understanding) Your participation in these trials is incredibly valuable. It furthers our understanding of...Reactions0reactionsComments0 repliesAwarenessResearch & Clinical TrialsTips & Advice
PregnancyI’m a looking for some information from mothers with MG on how the pregnancy went and how your child’s development has gone? Me and my partner have been looking into...Reactions0reactionsComments1 repliesAwareness
Negative Hospital Experience With MG?Have you had a negative hospital experience with Myasthenia gravis? Did the staff not have familiarity or knowledge with treating a patient with MG? How did you get through the...Reactions0reactionsComments9 repliesSurgeryAwarenessNewly Diagnosed
MG Treated with Steroids Induced Type 2 Diabetes?Have you been treated with steroids (corticosteroids) and eventually were diagnosed with type 2 diabetes? What dose were you on of the steroids, and for how long? --- "Statistics show...Reactions0reactionsComments2 repliesTreatmentAwarenessNewly Diagnosed
Struggling with Constipation?Do you struggle with constipation, whether MG or MG treatment-related or due to another cause? Have you found anything that helps resolve the discomfort and situation?...Reactions0reactionsComments1 repliesAwarenessTreatmentTips & Advice
Neonatal MG and precautions taken by birth team and throughout pregnancyFor those who have experienced the unique journey of giving birth while managing MG, could you share the precautions, if any, that your birth team took for the potential of...Reactions0reactionsComments0 repliesAwarenessTips & AdviceTreatment