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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Medication & Treatment Side Effects

Have you ever stopped a medication or treatment because of side effects? If so, did you switch to a different medication or treatment? How did you approach the conversation with...

IVIG Side Effects

IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...

What Part of Your Legs Do You Have Pain or Cramps Most Often?

What part of your legs do you most often experience pain or cramping? Are you currently on Pyridostigmine (Mestinon), or were you when you were experiencing this?...

Have you noticed any toe changes like curling or stiffness?

Have you noticed any changes in your toes, like curling or stiffness, either before or after your diagnosis of Myasthenia gravis? How have these changes affected your daily activities?...

How do you deal with fatigue?

Hello everyone! I am curious and would like to hear about the different ways you deal with/ handle being fatigued. As for me I always seem to have a roller...

Has an MG Treatment Caused You Increased Heart Rate?

Has a Myasthenia gravis treatment you have tried caused you an increased heart rate? If so, which one(s)?...

Mestinon side effects

I can no longer eat any tomatoes and any foods or sauces with a tomato base. Has anyone else experienced this with Mestinon, and is there a simple remedy?...

Side effects of medication

I was recently in the hospital with Acute Pancreatitis and a duodenal ulcer. I was in for five days and discharged. I was only home a week and went back...

Have You Had Adverse Gastrointestinal Issues From Mestinon (Pyridostigmine)?

Have you experienced adverse gastrointestinal problems/side effects from using Mestinon (Pyridostigmine)?...

Pyridostigmine/Mestinon Adverse Reactions

Did you try Pyridostigmine/Mestinon and have adverse reactions causing you to stop taking it? If you are comfortable with sharing, which specific side effects?...

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