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Read conversations, start a discussion, and connect with others about myasthenia gravis.

new medicine

Hi. My doctor switched my medication from Mestinon to Azathioprine. Anybody else taking this? The side effects look grim. If you are taking it what, if anything, happened to your...

Cellcept side effects

Hello, I’m in the UK and over here Cellcept is called Mycofenax. I ve just been put on this drug as I had to come off off Azothioprine as it...

Methotrexate

Is anyone currently taking Methotrexate please? This has now been prescribed for me as I was experiencing bad side effects from taking Mycophenolate. Mainly numbness of hands and feet, but...

Vyvgart Side-Effects and Adverse Reactions

We understand that using Vyvgart (Efgartigimod alfa) can sometimes come with side effects. Could you share any experiences you've had with it? Did it lead to your doctor ordering you...

Medication & Treatment Side Effects

Have you ever stopped a medication or treatment because of side effects? If so, did you switch to a different medication or treatment? How did you approach the conversation with...

What Part of Your Legs Do You Have Pain or Cramps Most Often?

What part of your legs do you most often experience pain or cramping? Are you currently on Pyridostigmine (Mestinon), or were you when you were experiencing this?...

Have you noticed any toe changes like curling or stiffness?

Have you noticed any changes in your toes, like curling or stiffness, either before or after your diagnosis of Myasthenia gravis? How have these changes affected your daily activities?...

How do you deal with fatigue?

Hello everyone! I am curious and would like to hear about the different ways you deal with/ handle being fatigued. As for me I always seem to have a roller...

Has an MG Treatment Caused You Increased Heart Rate?

Has a Myasthenia gravis treatment you have tried caused you an increased heart rate? If so, which one(s)?...

Mestinon side effects

I can no longer eat any tomatoes and any foods or sauces with a tomato base. Has anyone else experienced this with Mestinon, and is there a simple remedy?...

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