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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Getting a handle on MG (or trying)

I have been having fairly frequent flairs, due to stress, summer heat, and just too much exertion. And I have to admit...

double vision

For dealing with MY Ptosis based, or caused, double vision, I initially found the closing of one eye gave me clear vision...

Personal MG Manager

I got an email stating that individual managers are available to guide me with MG. I can't find that email. Does anyone...

3 Tips You Wish You Had When You Were First Diagnosed With Myasthenia Gravis?

Think back to when you were first diagnosed with Myasthenia gravis. What are 3 tips you wish you could go back in...

LRP4 Question

I have the LRP4 type so unfortunately the treatment options are very limited. Most treatments are geared towards the ACHR type and...

Confidence in your treatment regimen?

How easily or difficult is it for you to have faith and confidence in your treatment regimen? Has this changed over time?...

Vyvgart vs Ultomeris

I have to switch from my current IVIG to either Vyvart or Ultomeris. Has anyone tried both? Had success or concerns with...

Treatment

I have had progressive muscle weakness for last 10 years. They said it was an undiagnosed myopathy. A year ago I ended...

Tremors and Myasthenia Gravis

Has anyone here started experiencing tremors since their MG symptoms began? If so, where are you feeling them, and how severe are...

Prosthetic Contact Lenses

Have you tried prosthetic contact lenses? Did they improve your Myasthenia gravis eye symptoms and vision? - Jodi, Team Member...

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