Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Which antibiotics are safe to have if you have ocular myasthenia gravis

Please helpm me, What antibiotics are safe to have if you have ocular myasthenia gravis...

Mestinon Reverse Effect

Hello all, I have been taking mestinon for 8 years and was very dependent on it. Just recently I have been having reverse effects from it. It actually causes MG...

Thymectomy

Hi just to let the community know that since the thymectomy to remove a thymoma I have had three ct scans and I am pleased to say that all have...

Anyone else have MG and idiopathic transverse myelitis

I've had idiopathic transverse myelitis (TM) for the past several years affecting the lower half of my body. Last month I was diagnosed with seropositive MG after developing weak lip...

Could I have this disease?

I'm almost 56 years old and lately I have little to no energy, I've always been energetic some shortness of breath should I be concerned and should I try to...

Does a Negative ANA mean a negative for MG or are the specific antibody tests different.

Hello, I have been having crazy and life changing symptoms within a week after my vaccine in 2021 ( Pfizer). Blurred/double vision Eyelid droop-steroids help Weakness Tremors Cognitively I feel...

Not reacting to treatments

Hi there im a caretaker and my spouse has MG 3 weeks ago he was not feeling good since the new IV treatment was not lasting him ( vyvgard) And...

New life with MG

I’m just starting my journey with MG. I’m scared and concerned. People are beginning to notice that there's something wrong. My eyes are sagging, they drift outwards. I have trouble...

Seronegative diagnosis and two rare genetic diseases

I’ve tried posting as a status and it it’s won’t go. It’s been a really crappy couple of months. I’m so over wheelmen. My genetic test for mitochondrial myopathy came...

Seronegative MG

Hello! I was diagnosed in March 2020. I am a 30 year old female...I'll give you a little backstory..heads up it will be long! To start- I have never had...

Categories

Select a category to find topics that interest you.