Hospital Visit for CardiologistWell been in and out of hospital and a&e but this time I had been in hospital for about 5 days and...reactions1reply
Living with someone who has MGMy husband was diagnosed with MG when he was 23 with all classic sighns of choking weakness dropped eyelids he then had...reactions3replies
Older vs newer more targeted therapiesWhat are anyone’s experiences in changing over from older immunesupressants to the newer compliment inhibitors ( Solaris or ultimoris or ziucoplan )...reactionsreplies
Muscle Spasms with and without Pyridostigmine (Mestinon)Have you taken mestinon and experienced muscle spasms? Did your doctor have you suspend the use of the treatment? Have you noticed...reactions15repliesSymptomsTreatmentTriggers
Intravenous immunoglobulin treatment (IVIG) Intravenous immunoglobulin (IVIG) is a treatment option for many people with autoimmune diseases. IVIG can be a treatment for myasthenia gravis (MG)...reactions22repliesTips & AdviceTreatment
Newly diagnosedI recently went toa neurologist because of amyriad off what to me were unrelated symptoms:. Balance issues, hands tremor, double vision, droopy...reactions3repliesNewly Diagnosed
Living with MG since March 2024Life took a turn when diagnosis with MG. Survived a major flare following by thymectomy within half a year. Coping with recovery...reactions1reply
Outsmart MGNeck weakness-Anyone else have it? For the first time ever, I went to get out of bed last week and my body...reactions2replies
Prednisone problemsHello! I was on Prednisone for about a year and oh boy did it ever make me sick! I could barely get...reactions1reply
How did you navigate your first big holiday after your diagnosis?As the holiday season is finishing up, I remembered when I was diagnosed it was 2020 so, like most people, we didn't...reactions3repliesCopingNewly DiagnosedFriends & Family